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markhoofnagle.jpg Mark Hoofnagle has a MD and PhD in physiology from the University of Virginia, and is now a general surgery resident. His interest in denialism concerns the use of denialist tactics to confuse public understanding of scientific knowledge.

Chris Hoofnagle Chris Hoofnagle is a recovering Washington, DC lawyer and information privacy law expert at UC-Berkeley Law School. Denialism became apparent to him while working on consumer protection laws in Washington. The Denialists' Deck of Cards is essentially a how-to guide for being an industry lobbyist.

PalMD.jpgPalMD is a practicing internist in the Midwestern United States. Aside from the great joy he finds in his family and his work, he likes communicating some of that joy to others. He has a special interest in the ways patients---and we are all patients at one time or another---are deceived by charlatans. He aims to change the world, one reader at a time. Previous writings can still be found here.

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    « Turdblossom quits | Main | Prophetic words about the Iraq War »

    AMA and Prescription Data Mining

    Category: Medicine
    Posted on: August 13, 2007 11:35 AM, by Chris H

    It's a few weeks old, but I just came across this oped in the San Francisco Chronicle by Robert Restuccia and Lydia Vaias. They've painted a big target on the American Medical Association for its role in prescription data mining. It's important to note exactly what AMA is doing here, because, from the oped, it appears that AMA is simply selling lists of doctors that are later enhanced for prescription mining purposes.

    Few people recognize the role the AMA plays in making physician information available to companies that use it for pharmaceutical marketing purposes. The AMA sells information from its physician "Masterfile" to health information organizations that pair the identifying information with prescribing records from pharmacies and sell the whole package to pharmaceutical companies, a practice commonly called "prescription data-mining."

    Let me note that basically every non-profit with a membership sells lists. You can search for these lists on Direct Magazine's Listfinder, which has over 60,000 "datacards" from businesses and non-profits. The fact that other organizations sell membership data doesn't excuse AMA's actions, but I think what's happening here is that the activists are targeting AMA because the "health information organizations" and pharmaceutical companies are difficult to influence without passing legislation.

    Nevertheless, AMA's opt out program smacks of bogusity, and those of you who are doctors (AMA member or not), should be upset about it:

    Last year, in response to this growing pressure, the AMA created an "opt-out" measure, called the Prescribing Data Restriction Program. Difficult to navigate, poorly publicized, with only a quarter of physicians are aware of it, and used by less than 1 percent of doctors, the opt-out program is a step toward reform, but a small and inadequate one. The program does not bar the sale of prescriber information to pharmaceutical companies; it merely requests and then relies on the industry to prevent the transmission of this data to its sales teams.

    AMA's move recalls what the Direct Marketing Association did to prevent people from opting out of telemarketing. DMA created the "telephone preference service," poorly publicized it, make it difficult to enroll, etc. And then when the Federal Trade Commission proposed a national Do-Not-Call Telemarketing Registry, DMA said it wasn't necessary and that the private sector had created a better opt out system.

    So, doctors, take the time to opt out. Why? Because if you don't, AMA will claim that you don't care about having your information sold, and that people who complain about prescription data mining and the like are just fringe lunatics!

    Hat tips: US PIRG, PAL, Consumerist.

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    1

    Seven of Clubs, right?

    Posted by: valhar2000 | August 14, 2007 3:30 AM

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