Pop science journalists are finally getting a bit wary of the XMRV–>CFS story. The first to stick her neck out is Trine Tsouderos. You know Trine. She wrote that great piece calling out Dr. Oz, and the krazies at Age of Autism HATE HER.
Trine is super cool.
So I was a little annoyed she wasnt as ruthless when it comes to Judy Mikovits and the WPI. This article seemed to be more like “Heres what Judy says, heres what other scientists say. Heres what Judy says, heres what other scientists say. etc etc.” Not the more pointed jabs Trine took with autism woo and Dr. Ozs silliness. Looked like generic ‘balanced’ science reporting– “Heres what crazy person says, heres what other scientists say.”
Then I went back and really read what Judy was saying.
Then I appreciated Trines latest piece.
She got some of the most incredible, delusional statements out of Mikovits. These quotes are AMAZING!
In response, Mikovits has accused other researchers of bias and amped up efforts to sound the alarm over what she views as an epic health crisis. Invoking the world’s slow response to AIDS, she warned that XMRV infection “could be the worst epidemic in U.S. history.” Though her published findings address only chronic fatigue syndrome, Mikovits also has publicly linked the retrovirus to autism, atypical multiple sclerosis and other disorders.
Mikovits, director of research at the 5-year-old Whittemore Peterson Institute for Neuro-Immune Disease in Reno, Nev., said in an interview and by e-mail that she feels her finding is being ignored by a dithering, even hostile scientific world.
In January the Reno Gazette-Journal quoted her as saying one British team had “skewed” its study design to avoid finding XMRV in patient samples. “Some are not trying in completely good faith,” she said in an interview with the Tribune.
Mikovits wrote in an e-mail that she realizes presenting at the conference “could destroy what is left of my career” but felt she had to accept.
“I know that presenting unpublished data will hurt me but the political attacks on the WPI and the lack of government response to a Science paper showing a new human retrovirus detected in a huge proportion of CFS patients told me that unless we do something now this could be the worst epidemic in U.S. history,” she wrote. “Our continent will be like HIV Africa only worse!”
“It was an incredibly proud day,” Mikovits said of the paper’s publication. “I got calls from around the world. Dubai, China, you name it.”
Meanwhile, some people with chronic fatigue syndrome already are getting tested for XMRV and taking toxic drugs intended to treat the retrovirus that causes AIDS — an idea Mikovits does not endorse but declines to oppose.
Mikovits said she neither opposes nor endorses people’s experiments with anti-retroviral drugs. But, she said, the Whittemore Peterson Institute is helping some physicians monitor some patients’ therapy.
Last month she spoke at the Autism One conference in Chicago about her new research on XMRV and autism — joining a speakers lineup that included disgraced autism researcher Andrew Wakefield, who recently lost the right to practice medicine in Britain for serious professional misconduct.
Mikovits said she accepted an invitation to speak at Autism One to help sound the alarm. She accused researchers and government agencies of being more interested in previously published research linking XMRV and a form of prostate cancer than in her work. Chronic fatigue syndrome affects women at four times the rate of men, according to the Centers for Disease Control and Prevention.
“So research dollars will go for XMRV infected men with cancer but not women with CFS,” she wrote in an e-mail. “(This) left me no recourse but to play the autism card! Will they ignore the children too?”
I dont really feel as if I need to say anything. These comments remind me of my ‘debate’ with Lenny Horowitz. The comments are so outlandish and absurd I dont need to say anything to refute it. World-wide conspiracy, personal vendettas against Judy, organized sexism against CFS patients, not ‘supporting’ antiretroviral use while supporting antiretroviral use (more to come on that), cryptic predictions of the apocalypse…
I think its best to just let Judy speak for herself in this post.