This piece in Newsweek is a neat summary of the rise and fall of Icelandic genomics giant deCODE Genetics. Regular readers of Genetic Future will be aware that the company has been steadily bleeding capital ever since its launch over a decade ago, and recently declared formal bankruptcy. Since then the company has been bought up by US-based company Saga Investments. (For an excellent analysis of the implications of this sale, see Dan Vorhaus’ post on Genomics Law Report.)
A few weeks ago, meeting with Stefánsson in Boston, he proved his point. The two were mulling the fate of deCODEme, the consumer diagnostic test. Stefánsson said he still hoped to be “very modestly marketing” the test as of next year. Collier raised his eyebrows and said, “If you want one, you’d better buy it now.” In other words: forget it.
What will happen to the customer data generated by deCODEme if the service is abandoned? No-one knows for sure, but those interested in this question should revisit the excellent posts by Dan Vorhaus and Lawrence Moore on this topic here, here and here.