direct-to-consumer genetic testing:
Category: ashg2009
Personal genomics company 23andMe presented today at the American Society of Human Genetics meeting on novel genetic associations generated by the company using data from their customer base. The presentation showed that the company is capable of doing solid science, although it also raised worrying questions about the validity of survey results from customers who've already seen their genetic data.
Read on »
Posted by Daniel MacArthur at 5:30 AM • 10 Comments •
Category: commercial genetic testing
An opinion piece in Nature by scientists including J. Craig Venter calls for changes to the approaches personal genomics companies use to select risk prediction markers and display information to customers.
Read on »
Posted by Daniel MacArthur at 9:20 PM • 17 Comments •
Category: direct-to-consumer genetic testing
Personal genomics company 23andMe is considering offering discounted genome scans to clinicians to help them to make sense of the complexities of modern common disease genetics.
Read on »
Posted by Daniel MacArthur at 10:00 AM • 5 Comments •
Category: commercial genetic testing
In part 2 of a three-part series of guest post, lawyers Daniel Vorhaus and Lawrence Moore analyse the legal repercussions of a personal genomics company going bankrupt - what will happen to your data?
Read on »
Posted by Daniel MacArthur at 9:00 AM • 2 Comments •
Category: direct-to-consumer genetic testing
In the first of three guest posts, lawyers Daniel Vorhaus and Lawrence Moore explore the intriguing question of what happens to customers' genetic data when a personal genomics company goes bankrupt.
Read on »
Posted by Daniel MacArthur at 9:00 AM • 8 Comments •
Category: direct-to-consumer genetic testing
Germany's regressive new laws against direct-to-consumer genetic testing are transparently designed to avoid memories of eugenics and non-consensual medical experimentation - but restricting citizens from being able to access their own genetic information is not the right way to shake the horrors of the past.
Read on »
Posted by Daniel MacArthur at 5:15 AM • 19 Comments •
Category: direct-to-consumer genetic testing
The New York Times has an article pushing the possible dangers of customers peering into their own genome without supervision - but what supervision should customers look for, given that most doctors know less about modern genetics than the customers themselves?
Read on »
Posted by Daniel MacArthur at 2:30 PM • 30 Comments •
Category: commercial genetic testing
Peter Aldhous reports in New Scientist on systematic errors affecting the display of his own genetic data provided by personal genomics company deCODEme. While the errors themselves are fairly benign, there's an important lesson here for consumers of personal genomics data: engage with your data and question it until it makes sense.
Read on »
Posted by Daniel MacArthur at 7:45 AM • 5 Comments •
Category: direct-to-consumer genetic testing
The UK House of Lords has released the final report on its inquiry into genomic medicine, with some important recommendations for the regulation of the direct-to-consumer genetic testing industry.
Read on »
Posted by Daniel MacArthur at 5:45 PM • 6 Comments •
Category: direct-to-consumer genetic testing
GenomeWeb reports that the advocacy group Genetic Alliance is lobbying the FDA for the construction of a public registry of genetic tests:[Genetic Alliance Director of Genetics and Health Policy Kristi] Zonno said FDA should create a public registry for genetic...
Read on »
Posted by Daniel MacArthur at 7:10 PM • 10 Comments •
