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« Captain Disillusion | Main | New way to back up files? »

Interesting ethical question: When a DNA testing firm closes, who gets the data?

Posted on: November 19, 2009 5:02 PM, by Greg Laden

An Icelandic firm that offers private DNA testing to customers has filed for bankruptcy in the U.S., raising privacy concerns about the fate of customer DNA samples and records, according to the Times of London.

DeCODE Genetics, a genetics research firm, began offering personalized DNA testing through its deCODEme website two years ago. A customer mails in a sample taken from the inside of his cheek, and the service calculates the subject's genetic risk for disease -- cancer, diabetes, Alzheimer's, heart disease.

Story here

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The paying customer should have a copy of the record and the rest should be destroyed, both the records and the samples.

Posted by: NewEnglandBob | November 19, 2009 8:09 PM

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