Sometimes, in the course of blogging, I come across a story that I don’t know what to make of. Sometimes, it’s a quack or a crank taking a seemingly science-based position. Sometimes it’s something out of the ordinary. Other times, it’s a story that’s just weird, such that I strongly suspect that something else is going on but can’t prove it. So it was a few months ago when I came across the story of Alex Spourdalakis, a 14-year-old autistic boy who became a cause célèbre of the antivaccine crank blog Age of Autism.

I first noticed the story in early March when perusing AoA to see what the merry band of antivaccine propagandists was up to I came across a post by Lisa Goes entitled Day 19: Chicago Hospital Locks Down Autistic Patient. In the post was a shocking picture of a large 14-year-old boy in a a hospital bed in four point restraints. He was naked, except for a sheet covering his genitals. A huge gash was torn in the bedsheet, revealing the black vinyl of the hospital bed beneath. The boy’s name, we were informed, was Alex Spourdalakis. Further down in the post was another, equally shocking, picture of Alex that, according to Goes, showed severe dermatitis on Alex’s back due to the hospital sheets. The photos shocked me for two reasons. First, if the story was as advertised (something to be doubted always about anything posted to AoA), for once I thought that I might be agreeing with Goes and thinking that AoA was doing a good thing. Second, however, I was extremely disturbed by the publication of such revealing photos of the boy. Undoubtedly, Alex’s mother must have given permission. What kind of mother posts pictures like that of her son for all the world to see? Then there appeared a Facebook page, Help Support Alex Spourdalakis, which pled for readers to help the Spourdalakis family.

As I said, something didn’t seem right.

Now I know that something definitely wasn’t right, but I still can’t yet figure out what was wrong at that time three months ago. What is wrong now is that over the weekend Alex was murdered by his mother and caregiver, stabbed to death, in fact. The murder was carefully premeditated and truly gruesome:

Convinced that Alex Spourdalakis’ severe autism was growing worse, his mother and caregiver allegedly planned for at least a week to kill the River Grove teenager and themselves.

But the alleged murder plot initially went awry last weekend when the stocky 14-year-old didn’t succumb to an overdose of his prescription medications.

After waiting for several hours, Dorothy Spourdalakis, fatally stabbed her 225-pound son four times with a kitchen knife, then cut his wrist so deeply she nearly severed his hand, Cook County prosecutors said Wednesday.

His caregiver, Jolanta Agata Skrodzka, later stabbed the family cat with the same knife, then washed the utensil and put it back in a butcher’s block, prosecutors said.

Their suicide pact never succeeded: Both women took drug overdoses, then locked themselves in the bedroom with the slain teenager.

They were found semi-conscious inside the second-floor apartment on Sunday afternoon when Alex’s father and uncle came to check on the teen, prosecutors said as the women appeared in court to face first-degree murder charges.

More details are described in this Chicago Tribune story about the murder. Dorothy Spourdalakis and Alex’s caregiver Jolanta Agata Skrodzka had apparently discussed the plan to kill Alex using an overdose of prescription sleeping pills and explained why they did it in a letter. Apparently they killed the cat because they didn’t want it to end up in a shelter after they committed suicide. We also learned that police had been to the house several times to assist with transporting Alex to doctors’ appointments because “he was big and strong and unwilling to go to the doctor.”

As I read articles and posts about Alex Spourdalakis, going back to March, I had the distinct impression that there was more going on that met the eye. Lisa Goes might have been right. That has to be conceded. But while I occasionally looked at stories about Alex on AoA, they just didn’t seem to pass the “smell test” to me. Something, it seemed to me, was being left out. Neither did a lot of the claims seem entirely credible. At the very least, it was very clear that a highly biased, one-sided version of events was being presented. For instance, Goes claimed that Alex was kept in four point restraints 24 hours a day at two different hospitals, Gottleib Hospital and Loyola University Medical Center (LUMC), for 19 days:

According to her, at 14 years of age, Alex has a diagnosis of severe autism and cognitive impairment. He is non-verbal. In October of 2012, Alex began to suffer neurological events that prevented a healthy sleep cycle. He was awake for many hours at a time. Agitation and aggression ensued as a result of sleep deprivation. During this time, symptoms and behaviors that were indicative of severe gastrointestinal distress developed as well. A cycle of constipation, diarrhea and formed bowel movements surfaced and became a chronic problem. On February 16th at 5:00 am, with the assistance of police and paramedics, Dorothy took her inconsolable and highly-distressed non-verbal child to Gottlieb Hospital in Melrose Park, Illinois.

Because of Alex’s physical aggression, he was placed in locked restraints. At that time, Dorothy did not know the ER would be their home for the next several days, as Alex lay naked, in locked restraints, suffering bouts of violent vomiting, severe constipation and diarrhea. Neither she nor Alex bathed for the next 13 days while hospital staff and administrators attempted to devise a plan to care for Alex. “He was given Colace for his constipation and sometimes it would take security staff and nurses more than 15 minutes to arrive to help unshackle him so he could use the bathroom,” Dorothy explained. “Alex would scream as best he could when he knew he was going to have a vomiting episode, but security took several minutes to respond so Alex would lay in his own vomit, waiting to be released by a representative of security. He would be wiped down and returned to the same restraints.”

Sure, it was possible that the boy was being abused so horribly, first at Gottleib Hospital and then at LUMC, but it seemed damned unlikely to me, although at the time I had no way of refuting or confirming the increasingly lurid stories being posted at AoA about Alex. Still, I knew that tere are very strict laws these days about patient restraint. The last time I ever had to order four point restraints was over 14 years ago, back when I moonlighted as a trauma attending in, yes, the Chicago area, the same metropolitan area where Alex lived and died. Before that I sometimes had to deal with the restraint of patients when as a resident I rotated on the trauma services at the hospitals where I trained. Sometimes patients with head injuries or severe intoxication would be violent and require restraint. There were always a strict protocol that we followed, even back then. My understanding is that the protocols have only gotten more strict. Restraining a patient, particularly a minor, is not something that is undertaken lightly, nor should it be. To believe the AoA account, we have to believe that a severely autistic teenaged boy would be kept in the emergency room for several days (also very, very unlikely) and put in restraints in an abusive fashion at not just one but two different hospitals, continuing after Alex was transferred from Gottlieb Hospital to Loyola University Medical Center on February 28. Actually, it was three different hospitals, because later Alex was shown in four point restraints at Lutheran General Hospital during his last admission in May. More on that later.

Missing from these stories was a clear and cogent explanation of why Alex was ever admitted to Gottleib Hospital and then transferred to LUMC in the first place. It’s mentioned in some places that Alex was “inconsolable, highly-distressed and suffering bouts of violent vomiting, severe constipation and diarrhea.” I had to look for clues to explain it, and, I must admit, I still remain puzzled. Certainly, this Change.org petition demanding that LUMC provide what Ms. Spourdalakis considers to be “standard medical treatment,” which to her included gastroenterology. Peppered through various reports were indications that Alex had multiple allergies and GI issues. Having observed a fair amount of autism quackery on the Internet, these terms were huge red flags to me that strongly suggested to me the possibility that Ms. Spourdalakis was heavily into “autism biomed.” Another hint as to what might have been really going on comes from reports of a care plan conference on March 12. Allegedly (we only have one side of the story given that the hospital and doctors are bound by HIPAA privacy law not to discuss the case), if Ms. Spourdalakis failed to agree completely to the care plan Alex would be placed in the care of the Illinois Division of Family and Children Services (DFCS).

Elsewhere, I found references to demands that LUMC consult with an “Autism Medical Specialist to ensure Alex’s dietary needs were met to ensure his food allergies and intolerance’s were not “aggravating any underlying gastrointestinal or other medical conditions that may also cause adverse behaviors,” which sounds suspiciously like an autism biomed quack. In this post, Lisa Goes described a visit to LUMC with Jeanna Reed of Autism Is Medical, whose website if chock full of standard antivaccine and “autism biomed” tropes, such as a section on mitochondrial disorders, banners asking if autism is vaccine injury, and the like. It’s actually a pretty bare-bones website with lots of bugs, but the intent is clear. AIM is antivaccine to the core, and we already know that Lisa Goes is antivaccine, given that she has been a regular at the (Not-So) Thinking Moms’ Revolution. Indeed, in this very post, Lisa Goes unwittingly portrayed Jeanna Reed as ranting and haranguing Alex’s doctors with pleas to read quack studies and claims that “many of these children present with bowel disease and mitochondrial dysfunction. He could have GERD, duodenitis, esophagitis, ulcers in the small intestines, colitis. How can we know if we don’t test?” This was pure autism biomed rhetoric, leavened with the arrogance of ignorance. When one of the doctors referred to autism as a “mystery,” Goes totally lost it, yelling, “No! No! It’s not. It’s a medical illness that causes bad behavior. All you have to do IS READ*!”

Based on what was in retrospect in plain sight on the antivaccine blogs, it’s hard for me not to suspect that Dorothy Spourdalakis was subjecting Alex to “autism biomed” quackery, that she came to know Ms. Reed and thereby spread her story to the wider autism biomed movement at large. If my suspicions are ultimately revealed to be true, it would certainly explain a lot. Certainly, it would explain why Lisa Goes and AoA rallied to Alex’s cause so enthusiastically. It would also explain why the hero of the autism biomed movement himself, the brave maverick doctor to rule all brave maverick doctors, Andrew Wakefield, visited Alex during Autism One and posted to YouTube on the Autism Media Channel a video making an appeal for Alex:

Note that I’ve saved this video, in case it goes down the ol’ Internet memory hole. Also note that, in this incredibly creepy video (is it just me, or does Wakefield look creepier and creepier each time I see him?), Wakefield stated that Alex was scheduled to go to long term psychiatric care in 72 hours, as if that were the worst fate imaginable. He appealed for funds to allow Alex to be transferred to a facility where he would “get the care he needs.” What isn’t clear is why Alex was back in the hospital again. I say “back in the hospital” because on March 23 his mother published a post on AoA announcing that Alex was being discharged from LUMC. She thanked everyone at AoA, but she also revealed her antivaccine proclivities:

It is during times like this we as a family realize our full potential. We know no one will help us unless we help ourselves. The continued abuse, medical neglect, discrimination and ignorance have to stop. Vaccines have maimed too many already and there are many more to come. The CDC’s latest stats confirm that. We are not going away, nor are we giving up. My son Alex is just one of millions of children and adults who no longer will be silenced.

We as a group have been deceived and lied to long enough. Our children have paid and are continuing to pay the ultimate price because of greed. The health care system has failed terribly. It is our responsibility to continue to bring about change.

Please continue to follow Alex on his journey toward better health. Allow us to be a part of your lives. Our strength will continue to come from everyone and anyone who would like to continue with us. Alex will hopefully get the medical testing he needs but was denied until now. So much needs to happen in order for us ensure his recovery and I still need so much help! Please continue to follow my team of helpers for updates and fundraising efforts. I cannot tell you how much I appreciate and value every single one of you who have gotten us to this place. Thank God for the internet and facebook!

To me, this was the strongest suggestive evidence that Ms. Spourdalakis had likely been subjecting Alex to autism biomed quackery. The language was pure “autism recovery” language. The antivaccine sentiment was there. So was the conspiracy mongering against conventional medicine and big pharma. In another story, I learned that another antivaccinationist and advocate of “autism biomed,” Polly Tommey of the Autism Media Channel was involved, and Ms. Spourdalakis claimed that all Alex needed was “something simple, in the country, where he can run around, get the treatment that he needs so he can get better.” For some reason, however, in May Alex was back in the hospital. When the new reports of Alex in the hospital started coming out, even AoA denizens and supporters wondered what had happened, for instance, on the Facebook post announcing Andrew Wakefield’s appeal. The response from Jeanna Reed:

He’s back in the hospital. The sad truth is that this will be what is left, the only path…unless we start to treat the MEDICAL conditions, provide an appropriate treatment plan and support the families while doing it. A VERY TALL ORDER but one that has to become the norm. Alex does NOT belong in a psychiatric facility. Sadly, this is the only option so many face when all of the above is not available. We did our very best to try and help them, and will continue to do what we can but it’s not enough. We know so many who (if given the opportunity) could heal. So complicated…at the minimum PRAY for them and again realize this could be any one of our children.

I don’t know about you, but if I had seen this at the time it was actually published instead of now, knowing the ultimate outcome, I would have still found the language ominous. In any case, not long after Wakefield’s appeal, Alex was released from the hospital. Andrew Wakefield provided a statement to the Daily Mail after Alex’s death explaining what happened and covering his ass in the process:

On Sunday May 26, members of the Autism Media Channel (AMC) went to the Lutheran General Hospital in Park Ridge, Illinois. There we visited the late Alex Spourdalakis, his mother Dorothy, and his Godmother. Alex was in four-point restraint and apparently refusing to eat or drink.

His mother was beyond exhaustion and despair. The main reason for her despair was the prospect of Alex being sent to a long-stay psychiatric hospital and heavily medicated with behavior-altering drugs drugs without any treatment of his underlying medical problems.

AMC issued an appeal on Alex’s behalf to protect him from this fate. We did not, at any stage, advocate for his release from the Lutheran General Hospital.

The following day Dorothy informed us that the hospital could find nowhere that would take Alex and that his insurance carrier had refused to pay for any further inpatient care at the Lutheran General Hospital.

It appears that, as a consequence, he was discharged from that hospital despite his precarious position and that of his carers. It is our opinion that Alex’s tragic death reflects the abject failings of a medical system that has no effective answer to the autism crisis.

I should point out right now that I used to work part time as a trauma attending at Lutheran General Hospital from 1997 to 1999. It was a fine hospital then, and I have no reason to think that anything’s changed. Be that as it may, do I detect the stench of self-justification from Wakefield? He’s desperately trying to cover his posterior, but his fetid flatus of blame deflection leaks out anyway. It’s what he does. Wakefield’s fame mongering and conspiracy mongering aside, however, if what he says is true, it does point out another aspect of this tragedy, namely support for parents with children with special needs.

That being said, what’s also utterly despicable is the reaction of the denizens of AoA and other antivaccinationists to the news of the murder of Alex Spourdalakis. For instance, it is not infrequent to see antivaccinationists blame—of course!—vaccines for Alex’s death, the apparent underlying “logic” being that if he hadn’t become autistic because of vaccine injury then none of this would ever have happened. Such “logic” prevails in the comments of AoA posts about Alex’s death, such as this one and this one. For instance:

Though I can’t support the choice these two women made, it isn’t hard to imagine the desperation and hopelessness they were engulfed in. To watch your precious child suffer for so many years and then endure what this past spring brought for them. They fought and fought the beast head on and felt the hatred against them. It isn’t hard to imagine that they were exhausted. All of this happening in America no less.

No, these two women were, as far as I can tell, offered help but refused it because it was standard conventional therapy. From what I can tell from various blog and Internet articles, they appear to have subjected Alex to biomedical quackery and were unhappy that if Alex were transferred to a psychiatric hospital’s long-term care ward he would no longer be able to receive “autism biomed” treatments. Time and investigation by the authorities will tell if that was the case. Whether that is what happened or not, I nonetheless reject the “logic” of such antivaccinationists such as it is, that only makes sense only if you accept the pseudoscience claiming that vaccines cause autism. While one can sympathize with a parent facing the task of caring for a severely autistic child who is very large, very strong, and very difficult to control, as Jo Ashline says, autism is not an excuse to kill your child, ever. As one blogger put it:

So one of the reasons I’m really pissed off is because of the usual [eye rolling] “Oh, he’s in heaven now”. My favorite is the thing that one of the groups that was intended to work towards getting Alex out of the hospital was a letter to Alex in heaven suggesting that he thank his mother for stabbing him in the chest. [Sarcastic eye rolling] “Thank you so much for brutalizing me, it’s my favorite”. Because now, you see, he’s in heaven, which I don’t think exists. And he doesn’t have autism.

Harsh? Yes. But it rings true. The entire narrative of the autism biomed movement is that autism “stole” the parents’ “real child” away from them. Since the idea that vaccines cause autism is basically holy writ for the autism biomed movement, that means vaccines “stole” the real child away by making him autistic. Parents who try to “recover” that “real” child are thus viewed as heroic, rather than abusive, because they’re willing to do whatever it takes to defeat the scourge of autism (and vaccines) in order to rescue the “real” child within. One can’t help but wonder whether what was really happening was that DFCS was going to put Alex into a conventional long term care facility because his mother clearly couldn’t handle him anymore and was treating him with autism boomed. Unfortunately, it appears from what we know right now that Alex’s mother seems to have thought that he would be off dead than not being given access to what she viewed as “curative” treatments for autism. Events and evidence from the investigation and trial might prove that initial assessment incorrect, but for now it seems to fit with what we know. Was Alex collateral damage in this never-ending war by antivaccinationists against autism? Although what we know now suggests that this might be the case, we just don’t know yet. We’ll have to keep an eye on the results of the investigation into Alex’s murder to find out.

Comments

  1. #1 A Mom Who Can Think For Herself
    July 29, 2013

    @political

    You are on the money. These woman have NO business dispensing medical advice, especially in a situation as critical as Alex’s. It’s hard to believe people can have such big egos
    and believe their own hype. Legends in their own minds.

  2. #2 Krebiozen
    Oxymoron fatigued
    July 29, 2013

    I would like to express how refreshing it is to have ‘A Mom Who Can Think For Herself’ who actually is a mom who can think for herself.

  3. #3 lilady
    July 29, 2013

    @ Mom Who Can Think For Herself: I am not an “autism mom”. My son was born with a rare genetic disorder in 1976, which caused profound and multiple intellectual and physical impairments (spastic quadriplegia) and complex medical needs… a partially controlled grand mal seizure disorder, immune suppression and a bleeding disorder (pancytopenia, ITP and platelet aggregation and adhesion disorders). He also had “autistic-like behaviors”…not autism.

    So, I have been involved in advocacy on behalf of my own child and on behalf of other developmentally disabled kids and adults for 37 years…even after my son died, peacefully in his sleep, June, 2004.

    I also worked as a public health nurse clinician-epidemiologist, investigating cases, clusters and outbreaks of vaccine-preventable-diseases, and I know only too well how the small, but vocal anti-vaccine and anti-science parents of autistics and other assorted crank bloggers and their groupies, seek to destroy the public health system in our country, by scaring off parents to convince them that vaccines are implicated in the onset of autism.

    You are a welcome member of our community here at RI. 🙂

  4. #4 Alain
    July 29, 2013

    I would like to express how refreshing it is to have ‘A Mom Who Can Think For Herself’ who actually is a mom who can think for herself.

    Let me second that, it’s very nice to have a mom who does think better than all of the soccer mom at TMR.

    Alain

  5. #5 Politicalguineapig
    July 30, 2013

    AMWCTFH: Legends in their own minds.

    I think part of the problem is that parenting is much more of a chore these days, and it’s become something only a few people do. So, these women start winding down on their careers to prepare to have a baby, and then you have driven,highly educated women, who are bored and incredibly frustrated that they sacrificed their careers for an imperfect child, who loves them but can’t display it the way an NT kid can.
    Dads are suceptible to woo, too, but they are allowed to have a life outside of kids, so it’s not as noticeable. And unlike mothers, they have a socially acceptable escape route. The mothers tend toneed something or someone to blame and a way to ‘fix things.’

    Alain:Not soccer moms, bourgombies.

  6. #6 Julian Frost
    Gauteng East Rand
    July 30, 2013

    I would like to express how refreshing it is to have ‘A Mom Who Can Think For Herself’ who actually is a mom who can think for herself.

    Thirded.

  7. #7 A Mom Who Can Think For Herself
    July 30, 2013

    Awww…*blushing* thanks so much for the kind welcome. There are MANY who think like I do, but don’t speak up as much because, frankly, it’s not worth being attacked again and again by these groups of women. A nd they attack like a wolf pack! Look-I drank the kool-aide once. Nothing ever felt “right” but I was very scared and worried and most of all vulnerable. I thank God I never did anything outside of diet an supplements….chelation? HBOT? IVIG? No way!!! I love my child too much to even remotely consider such things. And when you come down to it, that is the fundamental difference …acceptance is a dirty word to them. If that word is used, people are told they have given up, too lazy, or scared because “it’s too hard.” It’s peer pressure and bullying as if we were all in high school. I do agree with the idea of ensuing there isn’t a medical issue (a TRUE medical issue) with these kids. But subjecting my child to unneeded spinal taps to check for cerebral folate antibodies is just plain wrong. (Besides-Dr Freye’s study wasn’t successful anyway). If these people want to do that to their children I guess it’s their prerogative, but I do not appreciate it when they hold these diagnoses, labs, and procedures as anything more than what it really is: “alt-med” quackery.

    Lillady-I am so sorry to hear of your son’s passing. He was very lucky to have you as his mother. I am glad to hear you continue to advocate for children and adults with disabilities!

  8. #8 A Mom Who Can Think For Herself
    July 30, 2013

    @political-that very well may be true. These women are no dummies and most have had very successful professional lives which gives them some “false credibility” in my opinion. They love their children just as you and I do; I just think their judgement is very lacking. Sometimes I wonder if they can’t handle the fact their child isn’t perfect because of their over-achieving ways. But that’s really not very nice of me to say because I don’t know. Maybe they love their kid so much it allowed them to fall down the rabbit hole. I draw the line when they back murderers. How far “gone” do you have to be to do that?!! I think they have crossed a line in that they are dangerous people. Very extreme in their views. Everything is a government conspiracy. God-how miserable their daily lives must be!

  9. #9 Denice Walter
    July 30, 2013

    @ PGP:

    I call them ‘bobos’ ( the bohemian bourgeoisie)
    For more of this material, see ‘nutureparenting.com- the project of Alison MacNeil, LKH and that woman who wrote “The Business of Baby”-
    -btw- her book sales also make HER part of the biz.

  10. #10 Denice Walter
    July 30, 2013

    @ A Mom…Herself:

    Unfortunately, several of the antivax elite have degrees/ have worked in social work, counselling, psychology ( i.e MacNeil & Professor of TMR, Ginger Taylor of the Canaries, Katie Wright )
    I hang my head in shame.

    -btw- welcome aboard; good commentary.

  11. #11 Edith Prickly
    July 30, 2013

    @DW – I trust you saw Mama Mac’s epic whinge from a couple of weeks ago about the friends she’s lost because they just can’t handle THE TRUTH about autism and vaccines? It’s a telling admission that she has a peer group that would support her in a reality-based view of her situation, but she’s willing to cut them loose so she doesn’t have to give up the false hope that she can “cure” her son. I hope those people will still be there for her if she ever wakes up from the TMR dream world.
    http://thinkingmomsrevolution.com/youll-never-eat-lunch-in-this-town-again/

    Hi Mom Who Can Think For Herself – welcome aboard!

  12. #12 A Mom Who Can Think For Herself
    July 30, 2013

    Bobos. 🙂

    I agree; backgrounds where they know enough to be “dangerous” so-to-speak. I admit-they must have some PR people “on staff” because I will say the roll-out and execution of the TMR stuff was done quite well. So, I suppose using their logic, those who don’t agree with them are “non-thinkers”? Very divisive strategies.

  13. #13 A Mom Who Can Think For Herself
    July 30, 2013

    Hi Edith-I read that one too. (Mama Mac=Allison MacNeil I guess?)

    Look at this presentation about how cults re-wire the brain. Sounds very familiar!
    http://m.blogher.com/frame.php?url=http%3A%2F%2Fwww.ted.com%2Ftalks%2Fex_moonie_diane_benscoter_how_cults_think.html&_back=http%3A%2F%2Fm.blogher.com%2Fidentifying-and-avoiding-autism-cults

  14. #14 A Mom Who Can Think For Herself
    July 30, 2013

    Not sure if anyone has ever read this….from 2009….very good

    http://m.blogher.com/identifying-and-avoiding-autism-cults

  15. #15 lilady
    July 30, 2013

    Shannon is part of the growing community of parents of autistics who have their own blog; people such as Matt Carey at Left Brain/Right Brain, Shannon and Emily Willingham at The Thinking Person’s Guide To Autism, Emily Willingham (again), on her Forbes blog, and Autismum, who also blogs on the Skeptoid blog.

    (There are others, that I may have missed), and a huge number of bloggers who do not have autistic kids, as well.

  16. #16 Liz Ditz
    July 30, 2013

    Hi, A Mom Who Can Think For Herself (and others who may be interested):

    If you would like to read other autism parents’ journeys, Shannon Rosa has been blogging at Squidalicious since 2003 (!).

    http://www.squidalicious.com/2013/07/10-years-of-squidalicious.html

    Emily Willingham started blogging about autism in 2006

    http://daisymayfattypants.blogspot.com/

    She’s stopped blogging directly about her children as they enter adolescence, and her main blog is more focused on science (with autism advocacy):

    http://www.emilywillinghamphd.com/

    Jennifer Byde Myers writes about autism and parenting at

    http://www.jennyalice.com/

    The four of us started a group blog, The Thinking Person’s Guide to Autism, in June 2010

    http://www.thinkingautismguide.com/

    Kristina Chew celebrates her son Charlie’s life at

    http://autism.typepad.com/

    There is a relatively new blog by autistic adults, addressed to non-autistic parents of autistic kids:

    http://wearelikeyourchild.blogspot.com/

  17. #17 Liz Ditz
    July 30, 2013

    Hi Mom…Herself, I have a comment in moderation which gives links to science-positive blogs written by autism parents (and autistics).

    The deal is, the anti-science, autism-hating venues such as AoA and Thinking Moms’ Revolution are a tiny faction of the broader autism community. They just have a big, well-funded bullhorn.

    That is in fact one of the reasons we started The Thinking Person’s Guide to Autism: to counter the loud but counter-factual narrative.

  18. #18 A Mom Who Can Think For Herself
    July 30, 2013

    Thank you – can’t wait to check out the links; I would love to read them. I follow The Thinking Person’s Guide to Autism on FB. Very good group! I appreciate what you are doing.

  19. #19 Politicalguineapig
    July 30, 2013

    DW: I better not; a woman can only take so much idiocy.

    AMWCTFH: That’s a very interesting article. Amazing how people can trick themselves into believing the dumbest things, isn’t it?

  20. #20 A Mom Who Can Think For Herself
    July 30, 2013

    It is…and what is our weak point? Our kids. I know how judgement gets clouded because I did the same. It’s out of love and being confused and scared. Then you have these people who prey upon the vulnerable. I’ve never been to Autism One but think of all those exhibitors alone who claim to have something that will help. I think a lot of these people who get into the “warrior” mode (not talking about these “leaders”) need help because they are being taken advantage of. It’s actually sad. Scammers and snake oil.

    I am glad to see there are many who oppose these radical viewpoints, even if they aren’t “as loud”. However, when I have taken a peek at Goes’ Facebook page I see someone who is just preaching to the choir. They just pat themselves on the back..but but according to her, she had “big pharma” watching her every move. Really?

    BTW-does anyone know the latest about Alex’s case? I haven’t seen anything…

  21. #21 Chris,
    September 1, 2013

    A Mom Who Can Think For Herself: “BTW-does anyone know the latest about Alex’s case? I haven’t seen anything…”

    The latest is that a certain CBS reporter thinks it is okay to murder disabled kids:
    http://thepoxesblog.wordpress.com/2013/08/30/it-is-now-okay-to-kill-your-child/

  22. #22 Lawrence
    September 1, 2013

    @Chris – I just posted over on the other thread, but I believe that the Prosecutors would be very interested to know exactly (and have them testify) what the involvement was of the folks from AoA – what encouragement or discouragement did they give to that mother, for example?

    Were they part of the decision-making process to refuse to accept assistance from the Local Autism Support Groups?

    If those Prosecutors are really going to get to the whole story, it would seem that AoA & Wakefield in particular, were intimately involved at some point with the family situation, and should be interviewed.

  23. […] received the support and medical help he needed, some autism-related sites, while he was alive, disseminated pictures and video of the boy that showed him strapped to beds, naked, with only a towel covering his […]

  24. […] received the support and medical help he needed, some autism-related sites, while he was alive, disseminated pictures and video of the boy that showed him strapped to beds, naked, with only a towel covering his […]

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