There has been a ton of hilarious drama going on with the XMRV fiasco, but I havent been writing about it because I dont actually care. I ‘cared’ about Chronic Fatigue Syndrome because it was associated with a retrovirus. Turns out it was all a mirage— The retrovirus known as XMRV is not infecting humans, and wouldnt be able to even if it wanted to.
So Judy Mikovits hiding on a boat and the Whittemores pissing of the Feds and the Mob, while fun for day-time soaps, is not real interesting for me as a science blogger (Note to Mikovits– your shit was contaminated by XMRV plasmid or artificially generated by inducing expression of ERVs. Keeping a vial of free virus in the same freezer as your samples doesnt get you out of this mess, chick. Also, if your shit was contaminated, and you ‘knew’ it July last year, why didnt you voluntarily retract?).
Why am I writing about this topic again now, then?
Because the XMRV fiasco has moved from the realm of basic science stupidity into Oracs world of physicians and scientists betraying the principles of our respective fields to administer ‘alternative therapies’ (read: stupid shit they are just pulling out of their asses, or else they would be in double-blind clinical trials) to desperate patients: Judy Mikovits and Jamie Deckoff-Jones.
Now, it would be one thing if these one-brain-cell wonder-twins were ‘treating’ sentient adults, free to do whatever stupid shit they want with their health.
Their guinea pig is a damn eleven year old kid.
You can download the moms account of events (along with some other observers) here— I had to click on the green button in the center of the page to get a pdf. The thing never loaded online. It is LONG.
When I fist caught wind of this, I was horrified, thinking that those two women were giving antiretrovirals to the kid. Thankfully, that does not appear to be the case. It appears their Super Awesome Magical Therapy is the same crap wooers have been pushing since the dawn of
time the Age of Aquarius– ‘Oxygen therapy’, vitamins, voo-doo potions via IV, whatever.
Dr. DJs other super ideas allegedly involved
video games ‘biofeedback exercises on an iPad’ and coffee/energy drinks. Video games, sugar, and caffeine. For a kid. Dont laugh. Its not any more stupid than the other crap people in her line of ‘work’ make up.
Judys contribution was allegedly some protein powder and vitamins from a company she works for, Pharmanex, which is totally not a MLM. Its *not*. For *real*. Several states have investigated and Pharmanex settled without admitting any wrong-doing. But it doesnt take a massive intellect like Judys to notice it would be GREAT for Judy to get people thinking that her companys products do anything for CFS (without any double-blind clinical trials to back that up).
Though I was dreading reading that document, dreading seeing what those awful people were doing to that kid (and the moms account of what happened is disgusting), the story has a happy ending. Mom wised up before things went from Bad to Really Bad (or Dead Kid). She ran into some nice people, including nice regular ol MDs, who helped her and her son, and got them back home to Ireland (Dr. DJ was ‘treating’ the kid in a rented house in Hawaii. Seems legit).
But while this kid got away, Dr. DJ and her husband appeared to be ready for more ‘patients’.
… I hope there is never a ‘Part 2′ to this post.