fetal bloodspots
rskloot | January 24, 2010I've been meaning to post about this for several weeks, but as we all know, things have been a weee bit hectic. But now, finally: News on the informed consent for using tissues in research front.
Since the 1960s, US law has mandated that all newborns be screened for
genetic diseases. What most people don't know is that those samples
are often stored and used in future research without the knowledge of
the parents (or, obviously, the children). I write about this in the afterward of my book, which is of course directly related to this issue.
For decades ethicists, scientists, policy makers…