Morgellons---cranks in search of a disease

I'm trying to understand "morgellons syndrome". Based on Morgellons Research Foundation reports, there are a lot of people out there who believe they have this so-called disease. But what is it? I decided to dig deeper on the research end of things. I went to the MRF website, and to MedLine, looking for something, anything, to help me find out more about this problem. I must report that the science doesn't look good for the morgie boosters.

First, there has been little legitimate research on morgellons as such. The CDC is doing an epidemiologic study to determine what, if anything, may actually exist.

The medical consensus is that so-called morgellons is a variant of delusions of parasitosis. It may be, however no case definition exists, and no central registry exists. Each case is treated on its own (and probably should be).

Since morgellons resembles in every way but name delusions of parasitosis, it is on the morgellons advocates that the burden of proof falls. If they wish to invoke a new diagnosis, they must have a definition, a way of distinguishing morgellons from DOP, and a reasonable hypothesis to investigate. So far, none of these has happened.

The dermatology literature has treated this phenomenon is a very sensible way. It has been recommended that patients' feelings and sensations be validated, but that they be told the truth---that there is no evidence of infectious or otherwise primary dermatologic disease. It is sometimes recommended that patients be told that they have a problem with the sensory apparatus in their skin and nervous system, and that medications that act on the nervous system be used. This approach is quite rational, and atypical antipsychotic medications have been used successfully.

This is in marked contrast to the bizarre approach taken by the morgies. Their "research foundation" has preconceived notions of what is happening---they have formed a conclusion rather than a hypothesis. This is fatal to science.

Read on....

If anyone is to take them seriously, they must focus on science. Define your hypothesized illness. Set up a study protocol. Find patients using your case definition. Find appropriate controls. Have other, independent researches attempt to replicate your findings.

At least one academic has been trying, but failing. Randy Wymore, one of the MRF's scientists (OK, the only one) is trying to come up with some useful criteria to evaluate so-called morgellons syndrome. Unfortunately, not being a clinician, he's a bit out of his depth.

In defining a disease, the signs and symptoms you use to identify a case should be unique to that disease, and sufficiently specific to separate out a "normal" person from one with the disease. It is not necessary to know the etiology (cause), but it is necessary to be able to point at a person and say, "Based on these unique criteria, this person has the disease."

The terms used by Wymore are very un-medical, which doesn't bode well for someone trying to gain legitimacy for a controversial syndrome. For example, he uses the terms "physical" and "mental" to group symptoms, something that a clinician would never do ("mental" being a vague, non-clinical term).

Morgellons is a multi-symptom disease that is just now starting to be researched and understood. It has a number primary symptoms:

  • Physical
    • Sponanteously Erupting Skin lesions
    • Sensation of crawling, biting on and under the skin
    • Appearance of blue, black or red fibers and granules beneath and/or extruding from the skin
    • Fatigue
  • Mental
    • Short-term memory loss
    • Attention Deficit, Bipolar or Obsessive-Compulsive disorders
    • Impaired thought processing (brain fog)
    • Depression and feelings of isolation

There are several problems with this description. First, how do you define "spontaneously erupting"? Given that one of the questions is regarding delusions of parasitosis, and that people with DOP pick and don't realize it, there must be a high level of suspicion, and a dermatologist who can often tell an "outside job" from other rashes should probably evaluate all patients.

Sensations of "crawling" are very common in a variety of disorders.

Any "fibers" found, given that we all wear clothes, etc, are suspect. It is an extraordinary claim to say that fibers found in/on skin are endogenous and not transferred from everyday fabrics, so the level of proof needed is very high.

Fatigue is experienced by everyone. How do we quantify it?

"Mental" probably means psychological or psychiatric, but I'm not sure. Short-term memory loss is something measurable with available psychological tests, so that can be documented easily---common disorders that cause memory loss, such as dementia and depression must be ruled out before a new disorder is invoked.

ADHD, mood disorders, and OCD are common psychiatric diseases. To subsume them into the definition of another disease is a mistake. To call them co-morbid conditions would be interesting. The big problem is that most of the other symptoms described could actually be attributed to OCD, so how do we tease that out?

"Brain fog" is vague. In fact the symptoms and diseases listed under "mental" are a complete mess, in that they are intermixed inappropriately and don't help distinguish "mogellons" from anything else.

Given that this definition is basically useless, research will be difficult. Under the "research" tab on his website, no specific projects are listed. As far as I can tell, the "leading morgellons researcher" doesn't have any active research projects or publications (at least no relevant ones on PubMed).

"Morgellons" is a group of patients in search of a disease. So far, the disease does not exist, but the patients are suffering. Misleading them by labeling them with a syndrome with no known cause or treatments is shameful.

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Yesterday, we looked at how real science works; today, in a repost from my old blog, we look at some really bad science. --PalMD I've been meaning to touch on "Morgellons disease" (a form of delusional parasitosis) for a while, but haven't figured out how to approach it. Thankfully, others have…

Seven years ago I would also have been a skeptic, as you are, regarding "Morgellon's Disease." I lived with excruciating pain, shame and embarrasement with the way this disease looked on my body and face. often, people asked me if I had cancer. When my 82 year old mother referred me to an internet website describing Morgellon's Disease I cried: cried because I had finally found out what I had and cried because of what this is. NOBODY in their right mind with this wants to be diagnosed with a mysterious illness. In this sense, a diagnosis of cancer would beeasier to handle-at least there wouldn't be a limited understanding and willingness to treat it. I never wanted to be forced to be an advocate for my health. I just want my life back, not to be a medical mystery, at best.

Your ignorance and closed mindedness is obvious. To think that you know of all the new, evolving, mutating diseases is a clear example of the God-complex some (thankfully not all) doctors have. I challenge you to take a serious and thorough examination of a patient with this debilitating disease. Yes, some are going to be delusionalists, riding on the coattails of a new, unspecified disease, but there are those of us who are TRULY suffering, and trying to get well, that are not into being sick but prefer to return to our normal, busy, and fulfilling lives.

I have been relatively healthy, very athletic all my life. I did not choose this disease, it chose me. Please, either help the situation, or leave us in peace to deal get over it without having to fight extra battles that are naive and opinionated.

By theodore &… (not verified) on 07 Oct 2008 #permalink

Sorry, but the science still does NOT support your self-diagnosis. The relief you feel is the relief every distraught person feels when they hear what they want to hear. In your case, you read something you wanted to read. And now you're upset that someone dares to tell you that what you read may not necessarily be true. The research into your "disease" is flimsy for the reasons that PalMD pointed out. You are likely ill with something, but it's not Morgellons. And just because the CDC is looking into the matter does not necessitate recognition of validity -- they will see if there is an association, case definition and etiology. And if they don't find it, they'd kindly like for you to consider alternative explanations.

By Rogue Epidemiologist (not verified) on 15 Oct 2008 #permalink

rogue-

I'd like for you to kindly get over yourself. What would drive someone like you to harass these people? I happen to be one of them. Do you think that somehow I am enjoying the fact that my life is virtually ruined until a cure is found? WTF is wrong with you?

Do me a favor and spend an hour with someone that actually has this thing before you spend another minute hypothesizing why it is not real. It is real and it is real bad. Pray you don't get it.

By triggrhapi (not verified) on 15 Oct 2008 #permalink

Um...one question...how do we know who has "morgellons"? What are the diagnostic criteria that separate it as a disease entity distinct from any other? I really do want to know, and Randy Wymore's definition is a cruel joke.

I'm the Rogue Epidemiologist. I am not obligated to be nice to you. I think you're stupid. I come on these boards to troll and flame. Difference between me and the other /b/tards, though, is that I know what I'm talking about.

So, in short, DIAF.

By Rogue Epidemiologist (not verified) on 15 Oct 2008 #permalink

PalMD and Rogue-

I'll tell you my story and I'll try to keep it brief. 9 years ago I discovered a "wart" on my penis. I had that once before when I was younger and thought no big deal I'll just go have it removed. Went to Kaiser and was told it was fungal. Creams lotions and potions didn't work. They did a biopsy which was negative and then told me I had "pearly papules" which I researched and determined that not to be the case.

I pretty much tried not to let it bother me. I used a condom whenever I was with my wife. One day about 3 months ago I soaked a piece of tissue in hydrogen peroxide and applied it to the "wart"... what sprang out shocked me... a tangled mass of fibrous material. I got a magnifier and looked closer. Now, at any time I choose, I can take a clean piece of tissue soaked in hydrogen peroxide and apply it to the lesion, and produce these blue (occasionally red) fibers. I have questioned myself if they could be environmental so I have done this test repeatedly buck naked fresh out of the shower using a white towel to dry myself and I still get blue fibers from in and around the lesion.

Now for the freakish part. I also started the "Budwig Protocol" which is a cancer treatment and seems to be helping. It also has been driving all kinds of strange materials out of my body... solid translucent crystals, orangish fluid, and fibers, lots of blue fibers. When I first began the amount of fibers was amazing, hundreds if not thousands, but now down to a trickle, only a few and they are smaller and more broken up.

Here's the thing... now that we are separated and soon to be divorced, I am concerned that any future partner I might have will be repulsed when I tell them of my "condition". I am the type of person that would not feel comfortable hiding this information from a potential mate. I have been back to my doctor but he is not convinced I am playing with a full deck.

I'm worried and pissed off and frustrated and it really bothers me when I here people trying to debunk something they know nothing about.

By triggrhapi (not verified) on 15 Oct 2008 #permalink

Okay. Now I'm ticked off. Red white and blue fibers from his penis? Someone owes me a new keyboard. That's some SERIOUS crazy!

By LanceR, JSG (not verified) on 15 Oct 2008 #permalink

You think your'e ticked off... how d'ya think I feel?

What makes you think it's crazy? Do you know something I don't? I have come to the conclusion that most people on this planet are so mentally f*cked up that all they want to believe is someone else is f*cked up even more. All of you naysayers will feel like complete arses once the truth is out on this condition, whatever it is. Remember this post and remember what a fool you were this day.

Closed-minded bunch of sob's....

By triggrhapi (not verified) on 15 Oct 2008 #permalink

The truth of your condition is simple: delusional parasitosis. With a twist of course; you've added red, white and blue fibers to your madness. (Patriotic much?) A little Freudian, perhaps? Slipping Old Glory to your old lady?

There are treatments that will help you. Seek competent professional help. Seriously.

By LanceR, JSG (not verified) on 16 Oct 2008 #permalink

Wow. Just wow. Budwig Protocol? You mean you're eating cheese and linseed oil? And you've got threads coming out of your bits.

There's a reason your doctor doesn't think you're playing with a full deck. That's 'cause trying to reason with you and others in your camp is about the same as trying to tell a true believer that in fact, Elvis IS dead. It's easier for us to just roll our eyes and mock you. Have you made these fibers spring for in your doctor's presence? Or did you just bring in a pile of something that looked like dryer lint?

By Rogue Epidemiologist (not verified) on 16 Oct 2008 #permalink

Rogue-

I think it is time to turn the table around and let's try and understand why you refuse to consider the possibility that this condition may actually exist

I'm pretty sure I made it clear in a previous post that I have been to several doctors over the years, all unfortunately HMO doctors that have diagnosed either a fungal infection, and precribed inneffective antifungals, or "pearly papules" for which there is no cure. My symptoms in no way resemble "pearly papules".

I have described in painful detail what I have been experiencing. The doctors are not interested in seeing samples, they don't even have a magnifying glass in their office. They are not mentally, financially or literally equipped to try and tackle this issue.

Fortunately, I have found a treatment that has provided me with tremendous relief, and it seems I have the little bugger cornered. All I have left is this stubborn little wart-like lesion that produces blue fibers. I have taken every possible measure to eliminate the possibility of environmental fibers contaminating the site. By the way, when comparing these "morgellons" fibers side by side with environmental fibers under 25x magnification, there are distinct differences. The morgie fibers are smooth and actually reflect light, where lint or fibers from my blue jeans do not.

Rather than applaud my efforts and the progress I have made in containing this scourge... you choose to insult, belittle and degrade. I don't know what else to say to help encourage you to open your mind. Perhaps there are rather limited boundaries as to what your feeble mind is able to grasp. Maybe your'e just a douchebag.

Remember this thread when Kaiser reports their findings. Think about your attitude towards this condition and whether you may be better suited for an alternate vocation, such as ditch-digging. I understand Joe the Plumber may be looking for help as well. I see some definate synergies there. Good luck to you.

By triggrhapi (not verified) on 18 Oct 2008 #permalink

Oh! And the patriotic prick (red white and blue, remember?) goes for the ad hominem attack! Will it be effective? Will it score well with the judges?

NO! Even the French judge gives him a 0.25! What a resounding failure! Stay tuned to the Trollympics for more exciting action!

When arguing with a crank that is completely immune to logic, reason, or reality, mockery is all that is left.

By LanceR, JSG (not verified) on 18 Oct 2008 #permalink

When this hits, you first feel like you got hit by a truck, like you are dieing. You have absolutely no energy. That is how I quantified my fatigue. I barely could get out of bed, take a painful shower, and make it in to see my MD. Who thanks to people like on this site, is encouraged to do nothing for me unless there is some test that comes back positive. Over the course of a couple of months you lose 40 lbs. None of your clothes fit anymore. Now when you start on Antibiotics because you read on the internet about others with the same unbelievable and crazy symptoms, you over the course of 10 days gain back 10 lbs and have enough energy to go on an interview. Then you can start back on a job and not lose your house to foreclosure. Although you still look like death. People that you know look at you in horror when they see you for the first time after three months. I wont get into the details about what has emerged from my skin. I wouldn't believe it unless it happened to me in front of my own eyes. No one deserves this, but when I read callous and insensitive opinions written by people who are supposedly educated and contributing members of society, I think one word... EVIL. How can anyone write such opinions about others who are suffering. This disease is real, and there is growing evidence it is already epidemic.

To the arrogance brothers: Mark, Chris and Pal, y'all deserve an especially bad case of it. You are part of what is making this world a living hell.

By Trying to survive (not verified) on 07 Feb 2009 #permalink

*facepalm*

Another crank who refuses to read, cannot learn, and insists that his/her delusions are special, not like all those *other* losers.

*headdesk*

By LanceR, JSG (not verified) on 08 Feb 2009 #permalink

And now you know EXACTLY why there is a "Bug Girl will not diagnose you" link on my blog.

they even send me pictures. *shudder*

Yeah, joke all you want until you see your children covered in sores and suffering terribly, it's all real funny, ha ha ha, we don't have it so let's poke fun at these poor miserable saps right? Let me tell you, I know from experience, it's a living hell and spreading fast, you might just get a chance to find out, then we'll see how funny it is.

When the CDC study is released (I predict they will stall as long as they can), they are going to say they have something very bizarre on their hands. Recently they did a one sentence update to the Morgellons page, with a a 2nd real update on another disease at the same time (RSS). I bet they are testing the waters to see just how many folks are watching this story. A real announcement is around the corner.

You guys are real bold to put your names by all of this evil you are spreading. Especially if you really believe we are all a bunch of delusional crazed psychos. I have archived your site. I will be sure there is a permanent record of who you really are.

By Anonymous (not verified) on 14 Feb 2009 #permalink

Speak your mind. Tell your readers more about who you really are. Tell me exactly what you think about me and the rest of the people that are suffering with this affliction. Show your callous evil nature a little more. Remember I will be publishing your words after you take this site down when real scientists look at what the CDC is trying to understand at this very moment.

By Anonymous (not verified) on 14 Feb 2009 #permalink

Actually the more I read over what you are doing, I implore your readers to take a look at your pictures and see the real losers. You are spreading a bunch of lies. You are part of what is destroying our civilization. You seem to get a real thrill out of making fun of other peoples suffering. You may or may not be delusional, but you are very sick human beings.

By Anonymous (not verified) on 14 Feb 2009 #permalink

Mark, Chris and Pal, Happy Valentines Day. You will soon know my name. After the scientific community acknowledges this problem, I will be sure to publish your works. There will be a permanent record of who you really are thanks to me. I have fought hard to get mine and my family's health back. People that stood in the way will be remembered. You will not be able to get a job if I have anything to do with it. I PROMISE YOU.

By Anonymous (not verified) on 14 Feb 2009 #permalink

Oh BTW. I live just north of you on Capitol Hill. Excellent advice: wait for the CDC announcement before you open your traps again. You already look like idiots. Don't make it any worse for yourselves.

By Anonymous (not verified) on 14 Feb 2009 #permalink

Ooh! Anonymous threats! That's not at all delusional behavior.

*headdesk*

I suggest reading something to combat your ignorance. You might also want to look at this before you spout off any more ignorant nonsense.

Seriously.

By LanceR, JSG (not verified) on 15 Feb 2009 #permalink

I didn't threaten you. I told you I was going to keep a permanent record of who you are based on your "hate site". I also am going to make sure your employers and schools are aware of your activity. Your site is really something. Like I said, you guys are particularly bold for putting your names by all this. You have gotten noticed. For the record, the following link is the first in a series of a strategy to inform the public about "Morgellons". You will see many more of these types of programs popping up over the next few months. This is a planned effort to avoid mass panic. Interestingly enough, people like you are factored into the strategy. You are labeled as a "hate group" by your government. I wont be anonymous to you very much longer. I look forward to you knowing who I am. You should read and dissect my posts. Then take a real good look at what you have been doing here. Don't worry, I wont be trying to help you be better human beings - I am not so ignorant to think there is any hope for you.

http://www.youtube.com/watch?v=0wGJHRyJUnA&feature=channel_page

By Anonymous (not verified) on 16 Feb 2009 #permalink

Seriously. Anonymous threats like "I know who you are" are really pointless. You really need help. Talk to a competent counselor, psychiatrist or other mental health professional... soon.

By LanceR, JSG (not verified) on 16 Feb 2009 #permalink

I've been reading about Morgellon's and I don't have it, but I just wanted to say that I completley believe people who do have, and I feel really bad that they are not being taken seriously by the medical community. New diseases, treatments, etc.. is discovered everyday so people shouldn't be so quick to dismiss it. Anyways, I just wanted to post that and I hope we continue doing research to help those with this life altering condition.

Robin, you are correct that this is a "life altering condition". That condition is Delusional Parasitosis. These people are suffering from a well-known, very treatable disease, but they don't like the diagnosis. Nobody likes to think that they are delusional.

There is no such thing as "Morgellon's".

By LanceR, JSG (not verified) on 19 Feb 2009 #permalink

f*ck off you stupid son of a bitch.. how do you decide on a topic? " oh this sounds like bs..let's cap on this"? idiot.. how many f*ckin illnesses started out 'questionable'! dumbass..how the hell do any of you know that this is dop..where do you get off? use your friggin brains...at any one time, whether it be cancer, aids, fibromyalgia, whatever..when first introduced to the medical community..no doubt there was scratching of heads..wtf is this? so..who are you all to quickly identify dop..really..who the f*ck are you?! live in my skin for one day..then tell me i'm mad as a hatter..get a f*ckin life..at least you don't have mine!

Lisa, srsly. Re-read what you wrote, and ask yourself why we think you may be a little, well, delusional. Aggressive and angry to boot, and completely wrong on how science and medicine work. Seriously. When we have a disease, delusional parasitosis, that responds well to risperidone and other antipsychotics, and people who claim to have "Morgellon's" also respond to these antipsychotics, we can generally rule out any new disease.

If believing in mysterious fibers growing from your skin gets you through the night and makes you feel special, that's great. Do not expect us to believe and reinforce your delusions.

By LanceR, JSG (not verified) on 22 Feb 2009 #permalink

I told you hatemongers that this story was going to break slowly to avoid more mass panic, in a time of mass panic. When the full story about this comes out, people like the three idiots that run this site will be looked on as enemies of mankind.

This is the NIH initial posting:

http://www.nlm.nih.gov/pubs/techbull/nd08/nd08_medline_data_changes_200…

This is the newly created category for "Morgellons Syndrome":

http://www.nlm.nih.gov/cgi/mesh/2009/MB_cgi?mode=&term=MORGELLONS+DISEA…

I told you that the CDC would anounce they have something very strange on their hands. That announcement is scheduled shortly.

By Trying to Survive (not verified) on 22 Feb 2009 #permalink

When I have a few minutes to completely waste, I look over what you are doing here. I look at your pictures and I see three very sick human beings.

Based on your rantings, you guys are the type of people that in the face of others suffering, an insidious cold smile comes across your face. You were closing the doors on those pathetic people you had just marched into the gas chambers in Nazi Germany. And you got a real thrill when you dropped the cyanide down the tubes into the chambers. The yelling and screaming actually gave you pleasure. That is the type of person you are based on what you are doing here. Your readers backing you are like minded individuals.

When the full story on "Morgellons Syndrome" comes to light, you will be like a bunch of cockroaches running for the corners. You are part of what has been slowing research into what is going to become known as the largest biological disaster to ever hit mankind. That is if it isn't already too late.

By Trying to Survive (not verified) on 22 Feb 2009 #permalink

I spent a few minutes making sure you guys are getting adequate SEO - no charge. When 100 million people search on "Morgellons Syndrome", your site will be high in the results. When you go running for the corners and take your site down, I will put a mirror site up - no charge.

New Survey: What do you think the label for people who stood in the way of Morgellons research should be?

PLEASE answer in your usual manner. Show your real self some more...

By Trying to Survive (not verified) on 22 Feb 2009 #permalink

Wow. I am absolutely whelmed. Wait... not quite that much... UNDER whelmed.

Largest biological disaster EVAR??? Wow. I'm really impressed. Hyperbole AND idiocy. What? No threats?

Evidence? Actual, you know, FACTS? Show me a "Morgellon's" microbe/bacteria/virus/whatever the hell you want to believe in. One. That's all it would take.

Don't have any? Didn't think so.

Go away now.

By LanceR, JSG (not verified) on 22 Feb 2009 #permalink

Buy yourself a $15 microscope from Kaybee Toys and look at your blood under 400xs magnification. You have it too - idiot. You will see what appears to be a fungus mixed in with your arrogant RBCs. Try finding an exact match for it. You wont.

Read the National Institutes of Health recent posting and shut your vulgar disgusting traps.

By Anonymous (not verified) on 22 Feb 2009 #permalink

I am very disapointed. You did not answer my survey question: What do you think the label for people who stood in the way of Morgellons research should be?

You put your names AND pictures beside what you are spouting off here. Why not answer the question? Be proud of who you are.

It sort of amuses me to think after all the people that have come forward on this disease, you still label us delusional psychos. If you are correct, then you are literally exposing yourself and your family to a lot of danger. You don't have to worry about me, I am not delusional.

You are one of those the "Earth is flat" or the "Earth is the center of the universe" or "That will never fly" kind of person. The kind of person that stands in the way just for the sake of standing in the way. Kind of pathetic don't you think?

I will make sure there is a published record of what you are doing here.

By Anonymous (not verified) on 22 Feb 2009 #permalink

C'mon - answer my survey question. State for the record what you should be labeled for standing in the way of research into this horrific affliction. You guys are so ugly (I mean in terms of humanity), but I bet the opposite sex is not particularly interested in you either.

I will admit that I have a vice: this exchange is partly for my own edification. I love exposing evil people for who they are.

And for my paranoid side: I see that my first tier firewall is receiving a port scan, spoofing and a few script kiddy attempts at hacking. I know you can obtain my IP address from your logs. Don't you worry, you will know who I am soon enough.

Evar? Idiot. Learn how to communicate before you go telling real people what is delusion and what is fact.

By Anonymous (not verified) on 22 Feb 2009 #permalink

Yes I am egging you on. Answer me you cold hearted jerk. You guys state at the top of your page that you are here to bother me. BOTHER ME YOU IDIOT... Live up to your stated mission.

After all, I am completely imagining these crazy fibers that are coming out of every pore of the skin of my body. I have drastic overnight weight loss that is also a result of my sudden onset of insanity, debilitating fatigue, extremely painful sores literally covering my entire body, and people like you tell me that I need a straight jacket and a chemical lobotomy with powerful mind f drugs.

You call yourselves scientists? You make all of these assertions without even looking?

Wake up everybody. Now is not the time to succumb to the type of person that is running sites like this.

By Anonymous (not verified) on 22 Feb 2009 #permalink

Okay, let's assume for a moment that you are correct, and everyone has this "mystery fungus" in their blood. Does it not follow that everyone would exhibit symptoms? Why only the chosen few? If you're looking for something that is affecting a tiny fraction of the population, you may want to look for something that is different.

I have looked at my own blood under high magnification. I don't recall any fungus.

As for your pathetic survey question: Sane.

PS "Evar" is a reference to the LolCat phenomenon. Learn some internet culture before you attempt to correct your betters. As a matter of fact, learn ANYTHING before you embarass yourself further.

By LanceR, JSG (not verified) on 23 Feb 2009 #permalink

You call yourself scientific? You wont even open your eyes and look. Idiot.

"Sane" huh? Running around diagnosing people you have never met with Psychiatric disorders, and poking fun at their suffering.

Why don't you try another tracert on my ip address today?

By Anonymous (not verified) on 23 Feb 2009 #permalink

Ever heard of the "null hypothesis"? Didn't think so. How about "Occam's Razor"? Not that either? Hmm... Do you understand anything about science? You have to have *actual* evidence, not a pile of anecdotal gibberish. Also note that anecdotal evidence about a delusional state is also going to be delusional.

And a bit of paranoia to boot! You do realize that you can't tell if someone runs a trace route on your IP? Again, delusional. Try anti-psychotics. Seriously, they work wonders.

By LanceR, JSG (not verified) on 23 Feb 2009 #permalink

I just wanted you to look up the organizations these messages are coming from - I never said I could see that you were running a tracert. Yes you are an idiot.

By Anonymous (not verified) on 23 Feb 2009 #permalink

How do you explain three different originating government organizations IP addresses for my messages? Now I am playing with you. You are arrogant, stupid, and evil all wrapped up in one. I have work to do, but I will keep your site updated as more of the science is unveiled. The NIH posting should have gotten your attention. Good advice to look under a microscope. LOSERS

By Anonymous (not verified) on 23 Feb 2009 #permalink

Wow. Such paranoia and delusions of grandeur. You really need to seek help. Are there people nearby who care about you? I'm seriously starting to worry. Anonymous threats, paranoia, delusions... have you considered therapy?

By LanceR, JSG (not verified) on 23 Feb 2009 #permalink

I really hope you aren't one of the MDs of this group of losers. No anonymous threats have been given. I simply said I was going to make sure there is a record here of what you are doing: making fun of people who are suffering, diagnosing people as mentally ill you have never met, and spouting off garbage like you are some kind of gift to science.

By Anonymous (not verified) on 23 Feb 2009 #permalink

Mark, Chris and Pal, Happy Valentines Day. You will soon know my name...People that stood in the way will be remembered. You will not be able to get a job if I have anything to do with it. I PROMISE YOU.

Threats. Now we'll add lying to the list. Anything else you want to try? Perhaps a little barratry?

Nobody here has "made fun of people who are suffering". I specifically have stated that these people suffer from a very real illness. One that affects all aspects of their lives. Now, if you don't like the diagnosis, then perhaps you have other issues you need to discuss.

I am serious about the counseling. Possibly medication. You are skating right on the thin edge of reality... be careful, please.

By LanceR, JSG (not verified) on 23 Feb 2009 #permalink

You think Morgellons is really delusional, aren't you a part of the medical community that didn't believe in aids? Many so called "experts" thur the years have been very WRONG about diseases. The "black death" was believed to be transmitted thur air, people were encouraged to wear garlic, among other things, to prevent the disease. In reality the disease was carried by fleas (on rats) Also,according to "experts" a bumble bee can't fly (wings too small) and a whale can't jump out of the water.(too heavy). There are other examples, but my point is,new things are being discovered, PLEASE consider the possibility that thousands of people didn't go delusional@ the same time with the exact same sx. I think you believe we are all delusional, please do more research and meet some real patients. Thank you for reading this. Best Wishes

By Brenda Brown (not verified) on 09 Mar 2009 #permalink

Morgellons is caused by a parasite, this parasite is tiny, often black with a shiny back surface. In its final developmental stage it often has a gray stripe on it's back. At this stage, the bite is very sharp, like a pin stick, and often goes unnoticed after the bite occurs. After a few days the bite resembles a red, raised pimple. The center enlarges and develops a crater like appearance. After approx. 1 week, the center, now large and red, ruptures and tiny developing parasites are released. The new hatched parasites resembles fine ground pepper or coffee. The bite site (sore) has a hole in the center, and will not heal until all the parasites are removed, the sore is slow healing and leaves a circular red-blue, shiny scar. Using a Betadine solution will stain the parasites and aid in their removal. Rubbing the sore with a moist cotton ball, I use witch hazel, will remove some of the parasites and they can be observed as tiny dots on the cotton ball. I believe the recent increase in staph infections is related to morgellons parasites. The morgellons parasite can live INSIDE the body, patients with sores and/or scars as listed previously, should have a stool specimen checked for eggs/parasites. The parasites can be found in the nose, often causing unexplained nosebleeds, and in the ears and mouth. The tiny parasites (the recently hatched) often bite and itches intensely. They grow larger as blood is ingested, and when removed the site bleeds dark-red blood profusely. The only effective treatment, NOT a cure is Clotrimazole and Betamethasone Dipropionate cream 1%/0.05% applied B.I.D. (RX. only) to clean skin and rubbed in very well. Important to rub in well. This cream, used as directed, will destroy the parasites in the "pimple" stage. The "fibers" are produced by the parasites. I have seen parasites with a fiber-like attachment, also tiny "pepper" size parasites in a thread-like formation. Fibers are not unusual in nature, ex. spider webs, silkworms,ect. I do not understand a lot about Morgellons, but the observations are based on 3+ years of having this syndrome.
I am very concerned about Morgellons Syndrome, it is spreading rapidly, especially among health care workers, many health care providers know very little, if anything, about Morgellons. Patients are usually dismissed as having mental problems and/or creating the sore themselves. Both DX. is totally incorrect. Morgellons has been reported in every state and many foreign country. Thank you so much for taking the time to read this, I often try to increase awareness of Morgellons and I'm often rejected, however this is a very real physical condition that will someday (hopely soon) be recognized by the medical community. Best Wishes

yeah...I'm going to start off by saying the title of this article IS insulting,however people in denial often resort to insubstantial insults to make up for their lack of research.People also love to jump to conclusions about things they don't know about,because if these things existed ,they would surely know(because these people know everything).I would advise you to stay on the heckling sidelines as you already seem to be in the fourth quarter.I do however understand your petty excitement and DELUSIONS of intellect on this matter for I was once a closed minded spectator.Well enjoy your condescending party, celebrating your "position" on a matter I'm sure you've had alot to do w/ as far as research and treatment of embedded fibers and cranks goes.

I would elaborate further regarding ACTUAL RESEARCH,you see the scientific method isn't relevant if you are a simple DENIALIST and do not meet w/any of the abovementioned cranks to see that you can remove the fibers from beneath unbroken,unscarred tissue and that there are ACTIVE PROFESSIONALS(not e-blahgers) doing constant research on the emergence of this syndrome.One Doctor sent samples of embedded fibers to MIT and another lab which concluded the fibers were polyester nanotubes w/silicone heads.You all should also know that the sensation of bugs crawling under the skin,is actually the growth of this nanotube network branching its way through the peripheral nervous system,driving the sufferers nearly mad.There are other components growing off of these nanotubes, there are transitional/battery metals gathering at various points within the network.people have purchased macro lens cameras and video taped the emergence of these fibers from their skin as they also move and waver for they are a living organism, unfortunatley your minds suffered syntax error a paragraph ago and you are not really the bunch to actually process information,however ,one upstanding Doctor did an interview and you can possibly open your mind(impossible?) and view it in it's three parts.
http://www.youtube.com/watch?v=JchfWlqbVxw

denial: refusal to admit the truth of a statement or charge.

Wow. Just... wow. Random all-caps, bald assertions with no evidence, and the usual "Nuh-uh! You're the denialist" tripe.

Really? The "fibers" were polyester? Wow. Clothing fibers recovered from someone's skin? I'm shocked.

I'm guessing risperidone would be best. YMMV.

By LanceR, JSG (not verified) on 21 Mar 2009 #permalink

Morgellons Attacks Teenagers Too;
Danny Shares His Story of How He Got His Life Back
Dear fellow Morgellons victims,

I'm writing on behalf of all the young people and the elderly with Morgellons who have been shunned, criticized, and outcasted by society thinking we suffers of this horrible disease are crazy. I personally knew absolutely nothing about this disease until I came home from school one day of September 2007 and noticed granule-like crystals on my hands. I also noticed clear fibers that appeared to be coming out of my hands as well. I went to the computer and typed in "black crystals on hands?" or something to that extent. I stumbled upon a few websites that had details of Morgellons symptoms and the blue, black, clear, and red fibers with granules coming out of hands, body, and or hair. I didn't automatically assume I have this disease after a couple months of thorough personal research I had whatever this bizarre disease was. Every single symptom I had matched everything I read. I had everything from the physical identification of Morgellons right down to all the mental and cognitive disorders of Morgellons; brain fog, I slept constantly, depression, insomnia at night (slept all through the days), lost a lot of weight, everything aliment you could imagine I had. But by far the worst symptoms was the anxiety that would come out of nowhere, it literally felt like I was even in my body at times.

It began to slowly but surely rule my life. I noticed the fibers everywhere in my home, friendâs homes, family memberâs homes, these fibers were everywhere but I was one of the only that had symptoms to this extent. My friends and family had the fibers on there body and hair as well. My friends were the only ones who believed me about the fibers and knew I was sick. I tried to express to my mother and stepfather what was going on but surely my mother thought I was loosing my mind which I can completely understand because of how bizarre this disease sounds to the layman. Finally after convincing my mom I had this disease I stumbled upon a website called "NutraSilver". My mother personally thought I was crazy but my stepfather said "whether its in his head or not we can see if this helps"

So my stepdad bought a bottle of NutraSilver and it came with another for free. The first night I tried the NutraSilver I had to lie down in bed with my mother I trembled so bad. When I woke up the next morning I felt slightly better. I started to use the NutraSilver a couple times a day and just put some drops in my daily routine of drinking water. Everyday progressively got better, I started to forget completely about Morgellons and live my life. It ruled my life, I am an 18 year old male (at the time I was 17). I also stumbled across an amazing doctor and friend named Dr. Susan Kolb. I found her website when I was researching about Morgellons and even though I lived many states away and was very embarrassed I deciding to just call her and tell her what was going on. She talked to my parents, talked to my family and tried to express to them that this is a real disease. Still after all of that they still did not believe. She gave me great tips to get slowly but surely better as well. I slowly started being able to go to school more and focus more on my life. Everyday with NutraSilver and Dr. Kolbâs advice made everyday easier to get through. As last summer came along (2008), I was very confident I was Morgellons-free. I completely forgot about the disease and was able to live my life.

I moved into a new home, had a new life ahead of me and I felt like my life was finally back, unfortunately I ran out of NutraSilver around September of 2008 and was unable to purchase it again with the lack of my finances. I stopped using it all together. Around November or December my symptoms started coming back fully. I had brain fog again, depression, anxiety, fatigue; the fibers were coming out of my skin again. I was once again infected. They were around my new home and in my hair and body once again. I talked to Doctor Kolb at least once a month to keep her updated. With her help I personally discovered some things that helped in the mean time until I could get another credit card to purchase NutraSilver once more. My symptoms got so bad living at my new home I finally ended up moving back into my motherâs house where I first discovered I had Morgellons. I still felt horrible, I discovered something called Trilogy Cardio Essentials in my fridge that mom used to lower her blood pressure and things of that nature. It was recommended by someone who also used silver on a daily basis that ran a herbal store down the street from me. So I took a couple swigs every day unknowing the effect it would have on me. The next day I glanced at my hands after I was out of the shower. I noticed the fibers purging out like I had seen with NutraSilver; it was very scary.

I am still drinking it and it helps just as NutraSilver has. I have used many things to help with this horrific disease but I can honestly say NutraSilver, Dr. Bronners, and Trilogy Cardio Essentials has helped the most by far.
Iâm sick of people ignoring this disease; even doctors are ignoring it. I know there are so many people that are struggling with this disease everyday, and I truly desire for them to live their life and again and take back whatâs rightfully theirs.

My life is finally coming into view again, and I literally owe my life to a man named Russell at NutraSilver and a wonder Doctor by the name of Susan Kolb. I have never met a person so dedicated to seeing their patients or customers get better than Dr. Kolb
Without their help, guidance, and advice I'm not too sure how long I could have held out with all the depression and anxiety.
My final advice to any man, women or child with Morgellons is get NutraSilver, have a positive mind-set and lives your life again; I donât want anyone to go through what I have been through with anxiety and depression.

Sincerely,
Daniel W.

I will list my personal protocol for Morgellons;
NutraSilver
Dr. Bronners Lemon Castile Soap ( you can use it for toothpaste, hair, body, lotion anything you can think of even laundry)
Acai berry
flaxseeds
Borax laundry detergent.
Air Filter
Trilogy Cardio Essentials.

Colloidal silver? Seriously? You have bigger problems than some mystery parasite. That shit can kill you, or turn your skin permanently blue.

Morgellon's is a myth. Get some psychological help.

By LanceR, JSG (not verified) on 12 Apr 2009 #permalink

Hair on his palms?

I thought the fibers were supposed to be red, white and blue.

While doing some research on a diagnosis for my youngest (NOT Morgellons) I stumbled across this set of posts - I don't even remember how. But all I can say is...

Holy smoke.

This sort of thing almost makes me want to go into clinical psychiatry just to see what the hell is going on in a person's mind. I don't know if the fact that people can vent their issues on the internet is therapeutically beneficial or dangerously reinforcing.

Just, wow.

Okay - back to work.

Also, at what point did psychological diseases become somehow less real? We are always accused of denying the suffering of these people, somehow being unsympathetic to their pain.

Does anorexia hurt any less because it is just psychological? Does schizophrenia, because it's "all in their head"? So why is "Delusional Parasitosis" such a bad diagnosis? Treat the real disease, and perhaps the suffering would be ameliorated as well.

**suffering from delusions of being awake**

By LanceR, JSG (not verified) on 14 May 2009 #permalink

polyester nanotubes w/silicone heads

Omg, we're getting invaded by aliens.
Actually, this would have a huge marketing potential, naturally grown polyester fiber, take that wool and cotton! And it comes with it's own silicone fiber sizing already, no more need to apply that in the factory for better handling.

I cannot believe this thread is still going!
Oh...wait. Yeah, I can. I get emails from these folks too.

I feel very sad for the Morgellons folks, and hope they can find treatment. I hope that mental health insurance finally achieves parity with 'regular" health insurance soon.

I think there is the real risk of a practioner being out of thei depth. If a patient presents with clearly psychological issues, most practioners will do an H&P, provide some palliative treatment and (hopefully) refer to a specialist. This is not easy as it requires the practioner to admit that they are unable to help the patient.

My spouse is a practioner who recently had to turn away a patient simply because they were seeking a diagnosis to support a legal action.

Holly Molly... I didn't like the way you, dear 'doctor' are talking here. Im sory to tell you that but, hey, someone had too: as far as you believe you are.. you are NOT God baby! So just stop acting like you're the guy who wrote the bible + 1 page... please.
You do not have to be arrogant and disrespectful to whoever it is. You really think that our problem is DOP??? It's your right. Now put your opinion staff aside, stop taking your condescending tone and bring us proofs which support your statements.

I'm from Montreal and I speak french, but I'll do my best to be understood.
I dont want this discussion to turn in a fight.
I prefer to keep my energy for those who want to see, to learn, to discover, to help, rather that to try to open the spirit of those who look with blindly.
To begin, I'm going to quote a paragraph which you wrote higher:
'This is in marked contrast to the bizarre approach
taken by the morgies. Their "research foundation" has
preconceived notions of what is happening---they have
formed a conclusion rather than a hypothesis. This is
fatal to science'
You are right: nobody knows so nobody can make any conclusion, cause as you said, it's fatal to science.
So, can you tell what you think you are doing here? From my point of view, you seem to MAKE A CONCLUSION (dop, mental illness..) RATHER THAN A HYPOTHESIS. Do I need to inform you that your BIZARRE APPROACH is not for the good interest of your patients, as well as your 'medical association' PRECONCEIVED NOTIONS. ;)
I don't think I have bugs or anything alive under my skin. The point is that it FEEL LIKE... When you wanna describe a feeling that you never feel before, it's just normal to make comparaison to something you know.
Follow the links to read letters from dr. Gergory V. Smith

http://www.cherokeechas.com/apptTips.htm
http://www.cherokeechas.com/gregs.htm

About DOP...
http://www.cherokeechas.com/derm-prn.htm

As you can read, to make a diagnostic of DOP, you have several tests to do on your patients. Well, I think the doctors who told me I was crazy must have a 6th sense, or they are more intelligent then Einstein, cause no test is needed: they only have to look at me from the other side of their desk, to tell me that im fine and it's all in my head!
GE-NI-US, my friend, that's what they are!
So let's talk about you, and your experience with Morgellons disease. Because according to your assertions- conclusions which, my lord, seems unshakable, I take for granted that you saw patients yourself who suffer from it, that you made your own tests and researches on the subject, and that you treated them from their delusion with anti-psycotic drugs. Is that right? So make us a favor and explain what you see with your own eyes, what you discovered with your own brain, wich medication you give to them, and how it help to re-connect to reality and forget about their delusion. Oh yeah, and important: Tell us what's happening to them when they stop to take your 'legal brain/feeling/emotion-freezer drug'

Internet, as doctors said, is not a reference at all. When I try to give them some pertinents doccuments printed on the net, they didn't even take a look. So it works in 2 sides. If the source of your information is internet, it's not good info and I didn't look either.

I do agree people seems crazy when thet talk about it. I seems crazy, too, sometimes. But it's not the madness which causes the disease, but the disease which causes the madness It's a fucking crazy mystery. A nightmare. People are scared, they need help, they beg for help and compassion. They still had no answers. No support. Nobody take time, nobody take a look, no ones try to work for/with us. And, as if it wasn't enough, they call us psyco, crazy, skizophrene or stress/anxious type of person. They look down at us,taking their superior face, (when they take time to look at us, in fact!) the little smile in corner of mouth. To see how the professional behavior, the public-spiritedness and the respect from the doctor disapear as soon as it is question of mental illnesses, I pity the poor men who are really afflicted by some mental disorder. As me, and as all of morgie's suffers, those people certainly fell like a piece of shit to people like you.

Anyway, I just want you to help me. Honestly, I wish that all that I feel/see is only in my head, a big delusion. Give me A LOT magic pills so I can come back from my la-la-land and get my life back, my contagious smile, my energy, my face god damn!

I can send you by mail some filament or fibers and you can look at them, and start a new post with all your master point that make you believe in what you believe.
You have nothing to lose here, I do. And i'm ready to send you all you need so you can do your own research : list of my symptoms, my feelings, my story and sample of what coming out of my skin ... You are so sure that what you think is the only THRUTH possible, don't keep it just for you! C'mon, all the world wait for answers: it's finally your chance to show the one and only truth: Morgellons doesn't exist, it's just some nutcases, living all around the world and didn't know each others, who share the exact same delusion. What's the big deal, hum? nothing's more normal then that! ok so I wait for you news muchacho!
And again...
please, place urself on the same step of me: we are both human, we both have hearts and a wonderfull ability to communicate with respect & intelligents/constructifs arguments!
Have a great week end!

By Miss sick&tired (not verified) on 13 Jun 2009 #permalink

me again, sory
Wonder what was you opinion about Sida case history, as well as fibromyalgia... at first no one believing in it. Now, it's a 100% real disease. It was news discoverys, news knowledges, evolution in comprehension of human body. Every discovery, in whatever aspect in life, first start by new questions, or MYSTERY, if you prefer. Mystery = something we didn't ear about before, something we didn't think it can happen, something we don't know!

The world is still in evolution.
People have to evoluate, too. To think 'maybe' when you always tought 'no way'
People have to adjust their own reality and belief.

If you don't, you just stay retarded and ignorant ever after! I don't point anybody here, talking about the world in general... just in case =) peace & love!!!

By Miss Sick&tired (not verified) on 13 Jun 2009 #permalink

I dont want this discussion to turn in a fight.

Followed by:

you just stay retarded and ignorant ever after!

Sad. I guess some of us just need to "evoluate" a little more. Oh, and learn how to read for comprehension. Why is that such an unused skill?

By LanceR, JSG (not verified) on 13 Jun 2009 #permalink

Thank you,Miss Sick and tired. I enjoyed your comments very much. In your comments you stated you spoke French. I think you did a good job interpreting into English. The statement"oh,and learn how to read for comprehension",was inappropriate under the circumstance. After 3+ years of being a Morgellons patient, I have also been Dx. as DOP, Excess picking disorder, and other equally inappropriate Dx. I have never been given a physical, had any lab work or medical history taken,(even when I requested those tests).I believe that Morgellons will be ignored and patients considered as mentally unstable, until a famous person gets Morgellons.(like Rock Hudson and AIDS) Then maybe the medical community will get serious and start researching Morgellons. In the meantime, we, Morgellons patients,are forced to suffer and research Morgellons on our own, perhaps we will stumble across some helpful information in the process. Best Wishes and Good Luck.

Is that all you have to say????
For real???

=) pffffff! well...
You are right : it's sad... so sad!
I think that you just make a fool of yourself, big time! Oups, u did it again ;)
I asked you clear questions, I spoke to you respectfully, and asking you for a constructive answer. Your immaturity is so ridiculous at this point.Your lack of critical sense and respect for others is more than hollow out. You lose any credibility by answering this way. For me, you are a big joke! I admit that you made me laugh with your message. Thank you then!
Maybe that you are right: I need to evoluate, because I am retarded and ignorant. I need your invaluable help, to be able to evoluate at your level, this class appart.
Maybe that to begin by answering my questions could help me!!!
Please, consider my limited level of intelligence and use simple words and make short sentences, so that I can understand ok?!?!

By Miss Sick&Tired (not verified) on 14 Jun 2009 #permalink

I have this lyrics in my head, a band of Montreal...
That says :

''
But I don't care!
I know that limited people
Want to mask their impotence
By trying to crush you
''

Situation more than familiar for me!
I love this song!
=)

By Anonymous (not verified) on 14 Jun 2009 #permalink

The last post was from me, I forgot to wrote my name!

Hi BHB!
thanks for your comments! =)
There's a case of famous person with Morgellons disease.
On rense.com :

''Former Oakland A's pitcher Billy Koch has it. And so do his wife and their three children. And though they can afford top medical care, doctors have no answers.

It started in Oakland four years ago. Koch saved 44 games and was the top reliever in the major leagues. His fastball wowed crowds. And then the strangeness began.

"He freaked out. He wanted to ignore it I wanted to too. But when it comes to your kids, you gotta stop ignoring it," said Koch's wife Brandi.

She describes their symptoms: "It was the scariest thing I had ever realized in my entire life. There was matter and black specks coming out and off of my skin."

Within two years -- at age 29 -- Billy Koch was out of baseball, partly because of the uncontrollable muscle twitching that went on for months at a time and often kept up him up all night.''

;(

By miss sick&tired (not verified) on 14 Jun 2009 #permalink

Okay, I'm coming to this post quite late, I was referred here through a series of links starting from the story about the nurses in Texas who reported the questionable behavior of a doctor and ended up being subjected to a flagrant abuse of power from the doctor's buddy who happened to be a sheriff who tracked them down although their complaint should been kept anonymous. One of them is standing trial for the felony charge of "misuse of official information" for taking actions that their code of ethics REQUIRED them to do. The story ended up dealing with Morgellons because the doctor sells his own personal treatment for the alleged disease, and now it's been alleged in court (but not proven as of yet) that the sheriff who pursued the charges is not just a friend of the doctor but his business partner in his herbal supplement business. Yikes.

All I'll really say about Morgellons is that this highlights the complicated nature of the doctor-patient relationship. I read through the comments, I have an idea of the mindset of those that suffer from what they believe to be a specific disease. I know enough to understand that self diagnosis is a notoriously unreliable thing, but what does a doctor do when the self diagnosis itself can be a part of the disease? I never imagined how convoluted the concept of ethics can get for a doctor.

How do you geniuses define the word "scientist"? I'm pretty sure I'm not a scientist, and I don't believe you are either. You sound more like you're in it for your ego and a fat paycheck.

What you're doing here sounds more like the work of lazy bureaucrats. Rather than explore the possibilities, you apply broad rules of thumb and call it deductive logic. I do know about logic, and I think it would be arrogant for you to think you know all of the variables at play here. Instead of investigating, you assume everything you've come to know in med school is scripture. Get with the times. Everything changes. Looking up old information is not scientific investigation. These people need proper medical investigation, not directory assistance.

You're like lawyers grasping for loopholes. "Hmm, could pass for follicultis. Yes it is typical folliculitis, nothing more, nothing less", or perhaps "Looks like it COULD be a textile fibre under my magnifying glass. Yep, must be a textile fibre because I don't know what to do if it isn't one."

Admit it, DOP is the "too hard" basket. People are turning up with legitimate samples and their doctors can only hear alarm bells. What if I came in with a matchbox full of guinea worms? Would you apply your rule of thumb there? What ever happened to listening to your patients?

You useless gatekeepers are stopping real investigation from getting done. This practice of ticking the boxes and prescribing anti-depressants should be criminal. Lazy people like you hate the fact that patients have access to the web. It's because they can second guess you when you try to feed them a cock and bull story to send them on their way.

Why would you choose to advertise yourself in this light? Your ill-informed opinion is out there now. It will come back to bite you when the real doctors publish some real findings.

You shouldn't be a soldier if you don't don't expect to go to war. You shouldn't be a cop unless you're willing to uphold the law. So why the hell are you people doctors anyway? You're obviously not interested finding in truth beyond a doubt.

By Anonymous (not verified) on 21 Feb 2010 #permalink

So very few of you Morgies understand the meaning of DOP. If you did, you would know that you aren't just DOP, but you are DOP by your own admission. Doctors can easily, and correctly, diagnose you as being delusional, just by hearing what you "believe" about your medical condition. You have diagnosed yourselves.

It's not about your symptoms. It's about what you "believe" about your experiences. Your beliefs are not only unshakable. They are also ridiculous, totally unfounded, and untrue. It's your beliefs, and beliefs alone, that determine whether or not you are DOP.

If you would treat the "mental" disorders, which are obvious to everyone but you, and stay on the medication your doctors prescribe, they wouldn't have a problem looking into any secondary "physical" problems you may have. Most of you would learn that your physical problems aren't nearly as bad as you thought, if you would just quit obsessing over them.

A patient needs to take first things first, and should never consider mental disorders as being something shameful. They're not! And everyone else knows you have them anyway. Like I said, it's obvious to everyone but you.

You've pushed and pushed for the government to classify Morgellons as an emerging physical disease. You've pushed the CDC into wasting precious tax money on your nonsense. The CDC knows its nonsense. They know you are delusional, but how is it going to present the truth to you without you going ballistic? What can it do but delay?

Many of you think that your family, friends, and the medical community have abandoned you. But they've told you, over and over, where the problem lies. But you've refused to listen, and act on their advice, and it's you that has abandoned them! Some of you have even abandoned your own children.

So, what can the "so-called" Morgellons sufferer do to end this dilemma? A place to start would be to listen to your doctors and follow their advice. And I'm talking about real doctors, not a quack Morgellons doctors! Another good piece of advice is to get rid of your magnifying glasses and microscopes, and quit digging around in your $hit!

Another thing! The Morgellons support forums are very harmful to your health, both physical and mental. They encourage you to ignore your doctors, perform harmful alternate medical practices, and remain in denial of the delusions you are having. They also seem to encourage you to distrust almost anyone with a sound mind. To make matters worse, you are making other vulnerable people sick, or sicker, by recruiting them into your screwed up belief system.

It's not bio-warfare. It's not nano-technology or GM research. There is no conspiracy. Very few, if any of you, have worms or other parasites. Morgellons, in itself, is nothing!! You are looking at things way too hard... things that you probably shouldn't be looking at at all. And the shame of it all, is the fact that the quack Morgellons doctors are laughing all the way to the bank.

Concerning the above post, I am more commonly known as Tallcotton.

By Tallcotton (not verified) on 21 Feb 2010 #permalink

A quite a while back Smileykins said that the Morgies are "coming out of the closet". That's exactly what they've been doing. They've always been here, but the Morgellons Research Foundation has given them the newer, although false, diagnosis of Morgellons. To the Morgie, this is more palpable, almost heroic, and with the help of Mary Leitao, they've been bold enough to show the world just how sick they are.

They come forth, screaming the question, "How could thousands of people from all over the world... people that have never met, or spoken to one another, report the same exact symptoms unless Morgellons is a real disease?" The symptoms aren't exact, but the answer is real simple. It's because Morgellons has the same symptoms as a particular "real" disorder. That disorder, of course, is Delusions of Parasitosis.

Doctor Harvey thinks that the people diagnosed with DOP actually have Morgellons. He doesn't realize just how close to the truth he is, but that's the typically backward thinking of members of the Morgellons/DOP community. Hopefully, when the CDC reports the truth, and the MRF is exposed for what it really is, some of the Morgies will realize they've been deceived.

Some of the Morgellons doctors and nurses are probably just as delusional as their patients. They do seem so. But with some of them it is apparent that they are greedy sociopaths, getting rich because of the suffering and desperation of the Morgellons patient.

I strongly believe that this is also the case with the Chronic Lyme Disease doctors. If there is such a thing as Chronic Lyme Disease, it's nowhere near as widespread as they would have people believe. Personally, I would love to see these charlatans prosecuted.

Tallcotton

By Tallcotton (not verified) on 21 Feb 2010 #permalink

I think morgellons sufferers should start collecting the fibers from their bodies and weave tshirts from them. Then they can sell the tshirts and use the profits made to conduct Morgellons research. Only then will they find a cure.

Voila maintenant 7 ans que mon épouse souffre de cette maladie.
Nous sommes Belges mais nous résidons au Portugal.Je constate que notre histoire est pareille a celles que je peux lire dans les sites morgellons. Les médecins ne nous croient pas et ne font rien pour nous si ce n'est que de dire que c'est de la parasitophobie. Seulement moi je ne suis pas atteint.Actuellement c'est exacte mon épouse souffre de délires mais ceci fait suite a la maladie et pas l'inverse.
Pendant des années j'ai vu et touché des choses pas normales qui sortait de sa peau et nos enfants aussi. Rares sont les personnes qui nous croient. Heureusement nous avons un ami médecin et lui il a pu voir au moins les grains noires qui sortaient. La reconnaissance de ce qui est vrai est une première étape vers un mieux être.
Maintenant que le morgellon soit lié aux extraterrestres est une de mes hypothèses. En 2001 j'ai fait un grand labyrinthe en maïs sur un hectare et par après nous avons vu des choses curieuses dans le ciel et même sur terre. Nos Voisins également.
Continuer a nier cette maladie est une grave erreur des médecins et des scientifiques. Je ne comprend pas non plus pourquoi le CDC tarde tellement à donner ses résultats.
Ce n'est pas normal comment la société réagi.