An Icelandic firm that offers private DNA testing to customers has filed for bankruptcy in the U.S., raising privacy concerns about the fate of customer DNA samples and records, according to the Times of London.
DeCODE Genetics, a genetics research firm, began offering personalized DNA testing through its deCODEme website two years ago. A customer mails in a sample taken from the inside of his cheek, and the service calculates the subject's genetic risk for disease -- cancer, diabetes, Alzheimer's, heart disease.
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Struggling Icelandic biotech deCODE Genetics has finally reached the point of formal insolvency. A press release today announces that the company has filed for chapter 11 bankruptcy in a US court:
In a filing with the U.S. Bankruptcy Court for the District of Delaware late on Monday, deCODE…
I was just sent this email by a deCODEme customer:
As a valued subscriber to deCODEme, we wanted to write to you directly to
let you know about some important developments in the company and how we
believe these will underpin our ability to continue to keep you in the
forefront of understanding…
A curious tweet this morning from personal genomics company deCODEme, barely a few weeks after the declaration of formal bankruptcy of parent company deCODE Genetics:
@decodegenetics: Migrate to deCODE this winter! Upload your genetic data for free. http://www.decodeme.com/data-upload
Here's a…
Pharmacogenomics Reporter has a fascinating article (subscription only, I think) on the impact of individual gene patents granted by the US patenting system on the future of personal genomics. Essentially, the issue for companies conducting genome-wide analysis (including SNP chips or whole-genome…
The paying customer should have a copy of the record and the rest should be destroyed, both the records and the samples.