amish
oracknows | October 5, 2016Whenever we discuss vaccines and vaccine hesitancy, thanks to Andrew Wakefield the one vaccine that almost always comes up is the MMR, which is the combined measles-mumps-rubella vaccine. In 1998, Wakefield published a case series of cherry-picked patients in which he strongly inferred that the MMR vaccine was associated with autism and “autistic enterocolitis.” Of course, even the way Wakefield spun it, this wasn’t enough evidence to link the MMR vaccine to autism, which is no doubt why Wakefield never explicitly said that it did in the paper describing his case series. My guess has always…
oracknows | October 14, 2015One of the more depressing topics that I regularly write about includes of analyses of news stories of children with cancer whose parents decided to stop science-based treatment (usually the chemotherapy) and use quackery instead. There are, of course, variations on this theme, but these stories take form that generally resembles this outline: A child is diagnosed with a highly treatable cancer with an excellent cure rate. Standard science-based treatment is begun, but the child suffers severe side effects from the chemotherapy. After an incomplete course of chemotherapy, the parents, alarmed…
oracknows | November 17, 2014A few weeks ago, Steve Novella invited me on his podcast, The Skeptics’ Guide to the Universe, to discuss a cancer case that has been in the news for several months now. The case was about an 11-year-old girl with leukemia who is a member of Canada’s largest aboriginal community. Steve wrote about this case nearly a month ago. Basically, the girl’s parents have been fighting for the right to use “natural healing” on their daughter after they stopped her chemotherapy in August because of side effects. It is a profoundly disturbing case, just as all the other cases I’ve discussed in which…
oracknows | January 28, 2014When last I wrote about the sad saga of Sarah Hershberger, the 12-year-old Amish girl from northeastern Ohio with lymphoblastic lymphoma whose parents, Andy and Anna Hershberger, decided to stop her chemotherapy resulting in legal action by Akron children's Hospital to have a medical guardian appointed to make sure that Sarah continues effective science-based therapy of her tumor, I intentionally chose a rather inflammatory title in which I proclaimed that she was coming home to die. I didn't do that lightly. Rather, I did it because I was thoroughly depressed because David Michael, the woo-…
oracknows | November 3, 2013Here we go again.
Over the last month or so, I've been intermittently writing about a very sad case, a case that reminds me of too many cases that have come before, such as Abraham Cherrix, Kate Wernecke, Daniel Hauser, and Jacob Stieler. All of these are stories of children who were diagnosed with highly curable cancers who refused chemotherapy and were supported in that decision by their parents. Generally pediatric cancers have an 80-90% five year survival, and recurrences after five years are rare; given that children can be expected to live many decades, the consequences of refusing life…
oracknows | October 28, 2013Yesterday's post about Sarah Hershberger, the Amish girl from northeast Ohio with lymphoblastic lymphoma who refused chemotherapy, prompting a court battle that led to the appointment of a medical guardian for her to make sure she receives treatment, got me to thinking (always a dangerous thing). Actually, I had to think back over the years about all the similar cases of unfortunate children with cancer whose misfortune was compounded by having been born to woo-loving parents, such as Daniel Hauser.
These stories are depressingly similar, as are the arguments that go on over them. First, a…
oracknows | October 11, 2013One type of story that I've fairly frequently commented upon since the very beginning of this blog is the story of children or teens with cancer whose parents decide to pursue quackery instead of effective therapy or children with other serious diseases whose parents reject effective therapy for them. Think way, way back to Katie Wernecke and Abraham Cherrix back in 2006. (Cherrix is still battling his lymphoma seven years later, having blown his best chance at cure back in 2006; I do not know how much longer he can continue.) More recently, there was Chad Jessop and Daniel Hauser. Just in…
sastyk | February 13, 2012One of our families favorite things to do is check out old cemetaries - my kids love to read gravestones and talk about the stories that came behind them. I love cemetaries - I find them comforting in an odd way, although I'm not fully sure I can explain why, and I'm glad that my children have the same passion for historical records and also the same pleasure in knowing something about lives before ours.
Walking in old graveyards is also always a reminder of how fortunate I am. Most graveyards have a "children's" section, or family stones record the brief and incredibly short lives of…